Posted By Posting
Mar 24, 2009
mommato3
susiegal
I was trying to find you since we had a lot in common. I would love to talk or email you with some questions about Pierre Robin and your experiences with it and the GERD, breathing problems, etc. It also looks like we may be on some of the same medicines. The doctor in Cincinnatti seems to be almost certain he has PRS. We are also interviewing some new pedi's and the two that we met with so far immediately told me, "Has anyone ever mentioned to you that he has Pierre Robin?" Anyway, we are seeing a genetecist and some other docs. I did just post on the Pierre Robin website. Thanks!!
Mar 24, 2009
susiegal
Mom to Charlie - cleft palate and reflux. Meds - zantac, prevacid, mylanta and reglan.
Hello! I just saw your post on the PRS website. I will email you at the address there. Happy to help! Susie
Check with your
doctor first!