Posted By Posting
Mar 09, 2009
bethe'
Trying everything before surgery.
Fundoplication question
My daughter is in the pre steps of the surgery. But the surgen wants her to have a pshycological evaluation to make sure that it is not a habit like biting your nails. Has anyone hurd this before? She has always had reflux. The psycologist thought that I was making it up when I had her evaluated. And Ciara would not talk to her bacause it was two weeks after the ph test which honestly tramatized her. She hates doctors now, the psycologist thought that because she would not talk that she was depressed. I think that this is a dumb step, but can someone shed some light on this for me. Why does she need this? I have not seen the doctors sence the results of the ph test (Kinda pissed at them). But I live in Alaska and there is only one PGI.Grr.
Mar 09, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
Hi! Reflux is definately not a habit -- thats crazy. I read your profile to see age of your child and if I were her I would not talk to dr. either after the horrible experience putting in ph tube. Our gi wanted to do a fundo. on my six year old when he was two. He insisted that it needed to be done. I said no. In the end, I agreed that if he did an endoscopic procedure of esophagus and stomach and the tissue samples showed significant damage he could do the fundo. Four years later, we still have been able to avoid the fundo. but we still take med for reflux. Some other moms may have more fundo info and some of their info may be positive. I have tried hard to avoid fundo because the kids in my extended family who have had the fundo have had significant complications. Their negative experiences have made me very cautious. Good luck
Mar 09, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Let me start off by saying that reflux is not psychological is nature it is physical.

BUT, the vomiting *CAN* be psychological in nature. Jedd did. He would vomit at the site of a spoon and vomit when his belly was too full, or he thought it was too full. His belly could NOT be too full at 4 ounce KWIM.

The main tests you want done before doing a Fundo are a Probe which you already had done, a EDG to see exactly how bad things are in there and some motility testing.

If the Probe is normal and the EDG shows NO damage, I would have a hard time doing a fundo. JMHO, I'm no Dr but I am a Mother who said NO to a fundo when he child vomited to kingdom come.

With a child who has lots of vomiting a Fundo can be not good. It can cause alot of retching which in turn will cause more problems.

It is ours and our GI and Peds thoughts that a Fundo should be done in life threatening situations. Like when the child is having respiratory issues from their reflux and it is not responding at all to meds or to a feeding tube like a GJ tube.

That all said, some kids have a fundo and it is the best thing for them. But it is MHO that I'd wait. The VAST majority of kids something like 90% of kids outgrow it by the time they are 2. If you can hold out I would.

Mar 09, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Has she been fully evaluated for food allergies/intolerances - both immediate (will show up on scratch testing) & delayed (won't show up on testing)? Have you read the chapter on the fundo procedure in the book "Is This Your Child?" by Doris Rapp (usually available through the library)? Ellen
Mar 09, 2009
bethe'
Trying everything before surgery.
When she had her endoscopy at the it showed bleeding ulsers, but then again at four it was healed (with no meds). Shortly there after it came back with a vingance. But the thing that concerns the PGI is that it does not hurt her. It stopped hurtng her after she was a infant on Zertec. It should hurt (even though we do not want it to). I have not found anything about it being a habit if they have always done it. When they did the first endoscopy they took a biopsy which they tested for allergies, nothing. No ciliac either. No medication has been able to stop it. Regalin made it even worse. Only did that for a couple of weeks, then I told the doc that she will not be taking it anymore, not too keen on it in the first place. And I will check out that book, thank you. Is this frustrating or what?? Poor babies
Mar 09, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
My daughter *does* throw up as a response to stress.
Mar 10, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
My son had a fundo at the age of 16 months so a psych eval would have been impossible. My son was very obviously in pain though and multiple endoscopies showed significant damge and his ph probe showed that he refluxed almost continuously. The reason we finally consented to the surgery was that he continued to have ALTEs where he turned blue and stopped breathing and aspiration issues. For us it was the right decision and has absolutely been life changing for my child. Good luck in your decision process. You could always consider a second opinion outside of Alaska.
Mar 24, 2009
bethe'
Trying everything before surgery.
Thank you for your responces. I am so frustrated, I called the surgeon (b/c the pgi is in Arizona) and all he said was that if we do play therapy and see a improvement he would be more than happy to do the surgery. I want to cry. That is not what I wanted to here, there had to be something else. I will look at my husbands insurance and see what is required to get a second opinion. Doesn't Seattle have a good childrens hospital? Thanks again.
Check with your
doctor first!