Posted By Posting
Mar 08, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Adriane's status and new website
I haven't been able to get on much lately. I will try to catch up at a later time. I wanted to post the new site that I created for A's family and friends to keep up with her. I am calling a new ped in the morning and a new GI also. They are both at least an hour away but I am tired of waiting for docs to get things done. I am seekign new eyes and new opinions and hopefully get new results. Keep her in your prayers. Thanks ladies!

www.caringbridge.org/visit/adrianereese

Mar 09, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
sounds like a good idea. i hope the new doctors will give you the help you need.
Mar 09, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Will check out the new site. Has Adriane ever had an endoscope with biopsy to rule out e.e.? If so, was it fairly recent? Eric's first scope (about age 1) was negative, the last two were positive. Ellen
Mar 09, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Ellen, She had an endo only around 1 yo. She hasnt' had anything since then. We got some good advice from the new doc and some new names for the specialists. We are going to try to move all her specialists to OU Peds in OKC. She has one there already that I really like and hoping to get the rest moved there. It won't be as close but maybe it will be better. She wants her to get through the VCUG and ultrasounds next week before we decide on the next procedure.

She did take her off the antibx and gave us some meds for her yeast infection. She did a stool sample of one of the diapers that she had while we were there. It was white and runny! EWW!

First impression was that she was thorough and not judgemental. We will see how this goes.

Check with your
doctor first!