Posted By Posting
Mar 07, 2009
I wish I had known about this place long ago!
Hi there, everyone. I'm Shelley, Mom to Megan (4 at the end of the month) and Nick, my nearly 17 month old reflux baby. He started out colicky, dealt with lactose intolerance (still going on) and after several fights with my pediatrician, started having him treated for reflux at 8 months, although I think it started long before that. We did Zantac for several months, upping his dose every 3 weeks or so, switched to Prilosec in December and just last week started on Prevacid, adding Zantac back later in the week after I was getting NO sleep (and of course DH was out of town for the week). I feel like I've been fighting my doc since the day my little guy was born and have finally gotten past not wanting to hurt anyone's feelings (I am very much a people pleaser - always have been) and scheduled an appointment iwth a new doc for a second opinion. Before we meet with her, though, the original doc finally finally scheduled an upper GI and we'll be doing that Wed. morning. Nick is waking between 3 and 8 times a night, always settles by 3 in the morning and then sleeps well until 7 when his big sister wakes up. His naps, which are 3 hours when his meds are working and the stars align (lol) and have dropped down to under an hour. My MIL suggested yesterday that we let him sleep in his carseat and I want to kick myself for not thinking of it sooner. He is still waking several times a night because he's confined, but he's not in the same pain. I'm hoping he'll adjust to the carseat and we'll all get more sleep. My DH is wonderful and does great with the kids when they're awake an happy but doesn't do at all well with Nick in the night when he's screaming in pain so I end up getting up most of the time in the night. Nick's tired, Momma's tired, and we're ready to find someone who is going to work as hard as I want them to to make my poor baby stop hurting. I am fortunate enough to have a very good friend who has two boys and both have reflux. She is the one person who I know IRL that I can go to to cry and complain because she actually understands. It's wonderful but now that right now reflux is winning the battle with me, I need to learn more about it and find ways to make him more comfortable until we can find drugs that can do it as well. Our ped took us off of the Zantac on Friday with no explanation. From what I can read online, that is probably because it would alter the results of his upper GI - is this correct? OK this is long and rambly, but as you all can relate, I'm exhausted and not making much sense these days. :) I'm sorry we all have to go through this journey, but am glad there's a place we can do it together! Shelley
Mar 07, 2009
Gail - mom to a six year old with reflux and an infant with reflux
Hi..Shelley! So sorry that you have had such a difficult time. I have two children with reflux. I think that most of the moms here have had a difficult time with doctors at one time or another and most of us are sleep deprived. With my six year old, I went through five pediatricians from the time he was three weeks old until age five months. I finally found a family medicine doctor who immediately sent us to a gi specialist at a children's hospital 2 1/2 hours away. Going to a gi specialist with experience treating reflux really helped us cuz our regular doctor had not prescribed medication that was strong enough. Maybe you can find a pedi who works well for you and will collaborate with a gi doc. At 8 months old my oldest was taking 40 mg of compounded prilosec daily which we purchased in two week supplies due to its losing strength over time. I don't know anything about zantac. My oldest child took it for three weeks before going to prilosec and my daughter has only taken the prevacid solutabs. Good luck with upcoming appt and upper gi
Mar 07, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi there. I am so sorry that you are dealing with this. It is the pits but it will get better when you find the right doc ( I would suggest a Ped GI) and meds and also as his body grows and develops more.

I remember thinking that I would never sleep does come back to you eventually. Try to take care of yourself and get some naps while hubby watches the kids.

My daughter did best in a vibrating bouncy seat with a white noise machine.

Mar 08, 2009
omg yes shelly i so relate with you the upper gi is actually kinda cool to watch but the baby will hate drinking that stuff fair warning and i soo relate to doctors not wanting to listen like us parents dont know what we are talking about we know when something isnt right. i am so glad your baby is doing better already and sorry the poor thing has to go through that. the only reason my son was finally treated is he ended up in the hospital from breathing in his stomach acid all the time and he'd stop breathing i mean actually turn blue and my first pediatrition i used told me i was over reacting and there was nothing wrong with him but i needed to have my head examined. ohhh i wanted to strangle him. but here we are 4 yrs later and hes doing much better off the meds and machine we just have to be carefull with what he eats. so it does get better i swear and now here i am starting the journey all over again with my new little one but thank god this time i found this place so maby i wont feel so alone and isolated.:)
Mar 08, 2009
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
I'm so sorry you have to be here, but you are among friends! I had a VERY hard time with my dd's GERD (and it is mild) Bouncy seats, inclined swings, or the incline pillows can work wonders for sleeping, though it didn't work for us - we got permission from the ped to prop her on her left side instead. I wouldn't go with the car seat - it can be too cramped and unstable - JMO.

Generally meds are dc'd before tests, though I don't think we had to for the swallow, just the scope.

Some other things to consider - a sling to carry baby so your arms don't give out, hold baby upright for at least 30 min after feeding, swaddling can help, dreamfeeding for non-night pukers, skin-to-skin contact for the inconsolable times, asking the MD about using Maalox or Mylanta in addition to the other meds...many other moms will have advice too, but it's all trial and error. HTH! WELCOME - IT DOES GET BETTER!!!!!

Mar 08, 2009
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Humn... my oldest was on Zantac and did not need to stop before her upper GI. My youngest is on Prevacid and also did not have to stop it before her upper GI either. I am not sure why they would want you to do that. Humn...

FYI, both of my girls did just fine drinking the barium for the upper GI. They don't need to drink a ton and they were so hungry from not eating that day that they downed it. Hoping your will be just as easy!
Mar 09, 2009
Trying everything before surgery.
I feel your frustration. When my daughter had her first barium swallow she did fine. Like Jen said they are so hungry she chugged it. You watch it go down then watch it come right back up. At least that is how my daughters was.
Mar 09, 2009
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Yeah! I'm glad you made it on. These ladies are great - and there's a lot to say about people who have and are walking in your shoes. :-)
Mar 09, 2009
Thanks Donnessa!
I'm glad to be here - thank YOU for sending me the link to get here. It feels nice knowing there are people who are also experiencing it, even though it stinks and I don't wish it on anyone. :) Shelley
Mar 14, 2009
mom with newly diagnosed GERD baby
My 4 month old daughter has just been diagnosed with GERD. She hardly sleeps and screams in pain, not a happy baby. She used to have her formula come up and out of her nose and she could hardly breath. We even had to call an ambulance for her once. Our doctor put her on rice in her formula which helps keep it down but she is still having lots of problems with the GERD. She has been on Zantac for a week with still not much relief. We will be calling our doctor tomorrow to let her know this medicine is not working plus she must hate the flavor of it because she keeps spittint it out no matter which we we try and give it to her! This is new for us because our first daughter, even though she was premature, she never had this problem.
Check with your
doctor first!