Posted By Posting
Mar 06, 2009
pisces25
Am I imagining it?
Hello to all. I am new here:) I wanted to get some support from other parents who deal with reflux. My son Max is 3 months old. He was diagnosed with reflux and feeding difficulties. I am a first time mom and I didn't know what was normal! I thought if this is how having a new baby is then no one would do it! So he is on Zantac now but it seems like he will be good for a week or so and then the screaming starts again. We upped his dose based on his weight gain and that seemed to help. I just feel like its a roller coaster and I can't ever relax because the screaming could start again. I am just trying to do my best. It just breaks my heart when he is hurting. Reading all your posts I realize I am totally new to this experience and have no idea what to expect. If I am rambling its because I haven't talked to parents who actually know what we are going through. So am I imagining that its harder than it really is? Thanks so much
Mar 06, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
no no no, you're not imagining anything...it's THAT hard. It sounds like the meds were working and now they are less effective. My guess is that your son may need something stronger than Zantac...maybe a PPI like prevacid. It's an acid blocker...Zantac is an acid controller...Prevacid can be much more effective and isn't weight sensitive. Make sure you document everything for his pediatrician and let them know that there is definitely some signs of breakthrough refluxing.
Mar 06, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Yeah, no. You're not insane. It really is this hard. And many/most times our kids LOOK healthy and normal so family/friends/doctors/strangers don't understand why you seem so sleep deprived and frazzled. Nope. Not imaging it.
Mar 06, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Sorry honey, but it is tough :) I have two kids--one is 9 and reflux was the hardest thing I've been through. do you breastfeed or bottlefeed? If you breastfeed, it could be something in your milk. If you bottlefeed, try different nipples or even dr. brown's bottles if you haven't. Do you have his bed slanted so it'll stay down at night? Try to keep him elevated as much as possible during the day.

I'm sorry my answers are so mixed up, I'm trying to hurry :)

We're here for you and it is a roller coaster.

Mar 06, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
YOu are not imagining it. My family and psychiatrist thought I was crazy.

Hang in there - go for a PPI. I bet it will help.

Mar 06, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Oh duh...I didn't even think about how weight sensitive zantac is. Every time the baby gains weight, it will have to be upped. I used the zantac efferdose tabs with Maggie. The tabs don't have to be upped as often from my experience. We only had to up hers once in the year she was on meds.
Mar 06, 2009
pisces25
Thanks everyone. We are bottle feeding formula. We met with an occupational therapist/feeding specialist that diagnosed Max with moderate to severe reflux along with feeding difficulties. She said it would be impossible to breastfeed based on his particular issues. I felt really bad about that at first but now I am ok. We are doing all the preventative measures we can think of including elevating him. I am planning on talking to my pedi on Mon if the larger dose doesnt continue to help. Its definitely touch and go. The pedi has already mentioned ordering a swallow study. I will suggest Prevacid also. Or the Zantac efferdose tabs. The OT also suggested a gastric emptying med like a laxative or zithromyacin (sp-?). I will do anything it takes to help him. Thanks for letting me know that it isn't normal for a new baby to be this miserable. Also, zack'smom- what is "breakthrough refluxing"? I will start keeping a journal. Thanks for the support!
Mar 06, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I'd be careful with an OT how will TELL you what meds and testing you need. It's against the law....they can talk to you about things within their realm of knowledge and meds do not fall into that category. I'd talk with the GI about it.

They also cannot tell you how severe your child's reflux is. You need a GI to do that.

Break through pain is when the meds are just not covering it even at a high dose. You can do mylanta in between med doses until the next daily dose rolls around.

I would certainly ask the Ped for a referral to a Ped GI. they are better equipped to deal with GERD than just a ped. We have a fantastic ped and even she knew we needed to see a GO for Jedd's issues. She was willing to step in and hlep when we had a horrible GI while we were waiting to see the one we have now.

You are soo right though, GERD is a horribly roller coaster we ALL want to get off. We have been on the ride for almost 2.5 years and it never gets fun, ever. I have talked to VERY few Mothers in person who go through what we go through. That makes it even harder. I am found awesome online support though and it has gotten me through the darkest of days.

Are you seeing any vomitting or are you dealing with a non violent refluxer????

Mar 09, 2009
pisces25
Jeddsmommy thanks for the information on OT's. I will talk to my ped about a GI specialist. That makes total sense to me now. He occaisionally vomits and it goes through his nose and mouth. It hurts when his medicine wears off. For the most part he is a a burp and fuss/scream kind of baby. He spits up but I know its not as bad as it could be. Wow its seriously nice talking to moms who know. :)
Check with your
doctor first!