Posted By Posting
Mar 04, 2009
Kristof's Story: Trouble with Doctors
My son was 4 weeks old when I noticed he was experiencing pain during and after feedings; all the classic signs of acid reflux. His pedi and his GI told me it was colic. I insisted and pushed them and finally got him on Zantac, which didn't do a darn thing. Then another fight to get him on Prevacid. Once the Prevacid kicked in he was a completely different baby. The problem is that his pedi thinks I diagnosed him based on info off of the internet and does not take me seriously. He gives me the meds, but I think it it just to shut me up. The GI we saw is a friend of the pedi and I know they spoke before our appointment. Not only was the GI rude, but he echoed the pedi's opinion..."IT'S JUST COLIC, TRY GETTING OUT OF THE HOUSE MORE OFTEN". Still, I get the medicine, but absolutely NO SUPPORT. In fact, every time I see the doctor I am told to ween him off the Prevacid. I try to ween him off and within a few days we are back to hellish square one. After a few months of being on the Prevacid I figured it would be time to up the dosage because he had gained 5 pounds. I had to fight tooth and nail for this and rather than just try upping the dosage they suggested Reglan??? Again, I think they just wanted to shut me up. I got a third opinion and this doctor upped the dosage and then my son was just fine. We also did an upper GI, but of course that did not show anything. I refused to put him on Reglan. I knew he had acid reflux, but I didn't think it was life threatening. Since then he has been on the same dosage for 4 months, albeit we have had to split the dose daily to make it more effective. I admit, my son did not have failure to thrive, he did not throw up blood. He arched and screamed, spit up and refused to eat. I would watch him reflux in his sleep, make a sour face and arch his back while swallowing. But, time and time again, the doctors insisted it was colic since he wasn't underweight. Now, I need support from his doctors more than ever and I know they think I am a total nut. I don't know who to turn to. All of the doctor's are connected and I am worried that if I go to yet another doctor, he/she will hear my pedi's opinion and automatically dismiss my concerns. If my son did not have acid reflux why did he do so much better on Prevacid? I hate to think for a second that I forced this medication on him when he did not need it. I feel like an incredible jerk. His doctors have made me doubt myself completely.
Mar 04, 2009
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
WOW! you need a new doctor. I think a lot of women on here have diagnosed their children based on internet research. I know i did...I went to our pedi and described how bad it was (he was refusing feeds completely) and she kind of blew me off as a new mom...I KNEW I was right, so I pushed and we started on Prevacid...he was a new baby that started eating! Hooray...but ours generally got worse and now he is a full fledged puker. We are on Reglan in addition to the Prevacid. I'm assuming their idea behind prescribing it is that if your son's tummy empties faster then he willbe hungry more often and want to eat. My son eats a decent amount now (17 months, no solids, formula only), BUT without the Reglan my son throws up HOURS later. I can't stress enough how important it is to have docs onthe same page as you. Your son probably needs some testing and if you can't get cooperation, you can't get proper treatment. I hope you can find a new doctor and some relief for your son. GOOD're in good company here. My son was never diagnosed as FTT, but he also never gained weight well. He is still a peanut, but we're getting there!
Mar 04, 2009
Gail - mom to a six year old with reflux and an infant with reflux
Don't doubt yourself. Moms know when something is not right. My youngest gerdling (five months old now) is a chub who wants to eat and eat for comfort. She ended up hospitalized in due to blue spells before her reflux was taken seriously and treated. Good luck in finding a supportive doctor who will listen to you.
Mar 04, 2009
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
RUN to another DR, I would fire them both soon.

That's awful they have put you through all that. I still can't believe that DR use the word colic. It's a shame. :-(

We had that type issue with our old GI. We don't regret finding a new one at all. There is only 1 peds GI practice in our area so we just went to a different one and he is totally awesome!!!

Mar 04, 2009
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
We had similar problems. Our first pediatrician told us to 'go home and have more children....' and 'if you don't want to be busy, don't have kids' (no, I'm not joking). He made me question my sanity as well as my mommy's intuition (new mom or not). Well after our first visit to the emergency room I decided it was time to find a new pediatrician. The one we have now is marginally better. We still got the 'colic' explanation (which I personally don't believe in) and 'it will get better by 3 months'. When it didn't get better by 3 months I was told 'it will get better by 6 months'. It's definitely extremely frustrating but do NOT question your instincts. You know when something is wrong with your baby and don't stop trying to get help until you are satisfied that you and your baby are being treated right. I too diagnosed my baby through no help from any doctors. I also had the doctor tell me to 'get out more'. I was also subtly accused of causing our feeding difficulties despite all the classic Sandifer's signs. We also have a baby that is gaining weight very well and thus it is much harder to be taken seriously. Don't settle for a doctor who is placating you by doling out meds... find one who will listen. Lastly, you are not alone. The support here is amazing and will help get you through the tough times.
Mar 05, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I can't believe that. You really need to find a new doctor. Reflux is something to be taken VERY seriously. It can cause a lot of problems if it is not treated properly.

Your instincts are correct (why else would your baby be doing so well on the meds)

Search, search, search for a doctor who is willing to help you.

so sorry you are dealing with them - as if you don't have enough to deal with.

Mar 05, 2009
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! In my opinion, you need to do what I and many others have had to do. Change doctors. You are not a jerk! You shouldn't doubt yourself! You should find a dr that listens to you and will at least take your concerns into consideration. My personal feeling is that no matter what concern I take to my kid's ped.--he should listen. If they don't agree, fine, but they should listen and if nothing else PROVE ME WRONG. Basically when my ped agreed to do testing, he was trying to do just that. He thought I was crazy and that Maggie had her days/nights mixed up. Boy did I prove HIM wrong :)

Sorry to go off like that but it disgusts me that drs don't listen to moms.

You can try to be stern with these drs and just tell them that you insist on having more tests done or just switch to a totally diff set of drs.

All of us here feel your pain. Just know that this is not your fault and you are not crazy.

One more thing...have you thought of seeing an allergist? I'm not sure how much they could do at this point but it might be helpful if you don't get help anywhere else.

Mar 05, 2009
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
This makes me SO mad!!!! You are absolutely doing the right thing and shouldn't be doubting yourself for a second - thank God you've done as much as you have or your son would really be in bad shape. Run, don't walk, to another doctor - even if it's out of the area. You - and even more so your son - deserve to be treated with dignity and respect. I know from experience that it's harder to have doctors take you seriously when your child is gaining weight. Keep pushing until you get the answers you need. You're your child's best advocate. (((hugs)))
Check with your
doctor first!