Posted By Posting
Mar 04, 2009
amym
New here, twins w/reflux, craniosacral?
I just found your site and I'm so thankful you're here. I have twins that will be 3 months on Saturday and they both have reflux. We are doing Prevacid 7.5mg solutabs at night, and Zantac 15mg twice daily. They get oatmeal in their bottles and are on Nutramigen. Rice didn't affect them well and my older daughter was allergic to it. Things get worse, then better over and over. It's driving us nuts. On Friday they are getting craniosacral therapy and I'm trying not to get my hopes up. It worked for my older daughter's reflux, but I know every kid is different. I would have done it sooner, but my girl twin contracted bacterial meningitis at 6 weeks and had to be on IV antibiotics for weeks. They wanted her to be totally done with it for a while before they would do this therapy because it stirs up the spinal fluid. Has anyone had success with craniosacral or chiropractic for reflux? Is there anything else we can do? We never lay them down flat either. This is taking its toll on my physically as well. I have thoracic outlet syndrome and my back, arms and hands are killing me all the time now. From holding them constantly. Thank you.
Mar 04, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I'm so sorry that you needed us but glad that you found this site. You have your hands full. We have done chiropractic visits for both of my girls and it is working pretty well with Morgan. Adriane seems better than she was but it is hard to say because she has so many other issues on top of the reflux. I think it depends on the child as to whether you will see results with it. You said that you aren't giving them rice and that they are on Nutramigen so you are on a better formula but you might need to try a more hypoallergenic formula like Neocate. Especially if there is a family history of food allergies. What tests have they done to confirm the reflux? I'm not sure where to guide you because you are doing a lot of things to help control it. Are you giving the meds at the same time at night? If so, try splitting it up by a couple of hours. The zantac needs to be given on an empty stomach at least 30 mins prior to eating and then the Prevacid at least 2 hours after or before the Zantac. I'm not sure any of this is making sense.

THe ladies on here are great and we have all been there. I can't imagine having two babies dealing with this at the same time. Just know that we are here for support anytime. -Amanda

Mar 04, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
We used craniosacral therapy and Chinese medicine for our son. The Chinese medicine seemed to really help with acid pain, and the craniosacral seemed to help with eating solids and the ability to physically relax. Nothing, including Western medicine, has actually stopped the reflux, but the only problem it seems to continue to cause is sleep apnea. I hope it helps your little ones!

Have you used chiropractic and craniosacral for yourself, as well?

Mar 04, 2009
amym
I myself have done both craniosacral and chiropractic and I love it. I used both for my older daughter. I'll ask the pediatrician about the Neocate too, there are a lot of food allergies in my family including my 8 yr old. I wasn't giving the Zantac 30 minutes before the food, so I'll try it. It's hard to predict when they'll want to eat they are pretty erratic in their schedule. I've been using oatmeal cereal instead of rice. It made a huge difference for a few days, then we're sort of back to where we were. They eat it much better than the rice we tried. Oh, I also give them probiotics, anyone else do that? I have colitis and it works for me. They haven't done any tests on them just a clinical dx. Thanks for your replies.
Mar 04, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
My whole family does probiotics. The problem with A is that I had to find a probiotic w/o all the allergens so you might check the ingredients on that if there are food allergies also. You will also want to check the ingredients on the oatmeal because it sometimes has milk and soy in it that can make it hard if they have allergies. My dd couldn't do rice or oatmeal. Actually, we haven't found much she can eat.

With the food allergies of your older child I would consider a food allergy or intolerance as a source of discomfort. The meds and feeding thing is hard. I still have a problem and A is 22 months and pretty regular on when she eats but I have to space out so many meds in the day it is difficult. Good Luck. I hope you get some answers and rest soon.

Mar 04, 2009
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
Also I would ask about trying a thickener like Simply Thich for the formula instead of the oatmeal as this could also be upsetting their systems.
Mar 05, 2009
ilovemykristof
You might want to look into the tucker sling with the wedge. This would keep them at an angle at all times and allow your body a much needed rest.
Check with your
doctor first!