Posted By Posting
Mar 02, 2009
party of five
New here and need advice
Hi everyone. I am mom to a 5-month-old girl name Sophie who was diagnosed with reflux at 4 months. (I also have a 5-year-old and a 2-year-old, but this is my first child with reflux.) Sophie started out as a very happy and content baby. She slept well from day one and by 5 weeks was sleeping 9+ hours at night and NEVER spit up. Then, at about 2.5 months, I began noticing a change. Her nursing sessions were becoming very frustrating. She didn't want to latch on, and once she did, she would pop off often and arch her back, fuss, etc. Then she'd be fussy for 30 minutes or so after finishing. I didn't initially think it was reflux because I always assumed reflux meant spitting up and not sleeping well, and she had neither of those symptoms. But, when things didn't get better by her 4-month checkup, I mentioned the symptoms to my ped and she thought it could be reflux and prescribed Zantac. There was no improvement with the Zantac. In fact, I felt like she got worse. Besides still exhibiting the same reflux symptoms, she also started waking at night (which I realize could be unrelated), and started this awful grunting/groaning sound and although she didn't necessarily cry when grunting, she seemed very uncomfortable. So, I gave it two weeks, and when nothing had changed, called the ped back. She switched me to Prevacid (15 mg 1x/day) and within 4 days, Sophie was like a new baby. The grunting stopped, she was totally happy all day, and she begain eating much better and was not fussy at all after eating. I could put her down without her crying (a big pro with two other kids to take care of) and she started sleeping slightly better (although still not as long as she had before starting any meds). I though we had found our miracle cure until...2.5 weeks later, she is back to grunting, fussing, and generally being unhappy after feedings. (Although, she's doing OK during her feedings.) It's been going on for 4 days straight now, so it doesn't seem like a fluke, and she's also had a few episodes of inconsolable crying during the last few days, two of which were in the middle of the night. She just wakes up crying and can't be calmed down for about 10 minutes (she'll kick, arch her back, etc.), then she suddenly calms down and conks back out. She also seems very gassy and I feel a lot of bubbles in her tummy. So now I am left totally confused and wondering what to do next. I go back and forth between thinking the meds are hurting her tummy to thinking maybe the Prevacid started to work, but she's just not getting a big enough dose, to wondering if she even has reflux at all and I should just stop the meds. Has any dealt with anything like this? What would you do? I hate to call the ped again and have her change meds yet again. I'm tempted just to quit giving her anything and see if that helps, but I also still feel in my heart she has symptoms of relux. Any advice would be greatly appreciated. Thanks in advance!
Mar 02, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
Hi there! We are currently going through exactly what you are so you are not alone. My daughter is 5 months old on March 7th and in the last week we have really gone downhill with all the symptoms you have described... the fussy feeding, uncomfortable all day grunting and groaning (which is driving me to tears), increased night waking with crying that requires rocking back to sleep (kicking/arching included), bubbly stomach etc. She's also really drooly, belchy, gulping, swallowing, spitting up sometimes hours after eating etc. She has also been having episodes of choking. We are on the prevacid solutab (15mg/day) and added zantac 15mg twice daily to the mix. We did see an improvement with the combo of meds but for a very short time and just yesterday I found out that the zantac dosing for her current weight is too low. So imagine my frustration and I have a call in to the pediatrician. DON'T feel guilty about contacting your pediatrician -every day if you have to- until you get things right and your baby is happy. As others here will tell you the 'reflux rollercoaster' is a tough one and there is no one 'magic bullet'. You have to keep trying until you find what's right for your baby. Good luck and keep posting.
Mar 02, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
You could try splitting the solutab in half and give half in the morning 30 minutes before breakfast and 1/2 in the evening 30 minutes before feeding. Sometimes that helps. Also, make sure you are spacing the zantac and prevacid. I think the Zantac needs to be at least an hour from a prevacid dose.

We used a pill splitter and stored the other half in a zip loc bag to keep in very dry.

Mar 02, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Splitting the prevacid for 1/2 in morning and 1/2 at night worked best for us as well. Also making sure to give the meds on an empty stomach, 30 minutes before meals also has helped. Are you still breastfeeding and have you noticed any patterns with foods you are eating and her levell of discomfort? Some moms have found good results from trying to eliminate the most allergenic foods from their diets while breastfeeding refluxers. Also, is she at all constipated? My refluxers had a rough time with constipation and it seriously aggrevated the reflux. Other things that can cause a return or flare are teething or illnesses... are you experiencing any of those things as well? Humn....
Mar 03, 2009
ccmom
I feel for you! I have a 3 month old with almost the exact same story. The grunting/groaning in pain is enough to drive me crazy! We are also on the 15mg Prevacid solutab and it seemed to help for a little while but now doesn't seem to make a difference. Our little girl also has severe vomiting for hours after eating so we are going to a Pediatric GI on March 16h and hope to get some more answers. Hang in there. Our baby has been doing the thrashing and grunting thing since she was 3 weeks old. We are finally trying to "train" ourselves to sleep through some of it as best as we can. But it still breaks our hearts. It does give us comfort to know that we aren't crazy and that other people are experiencing the same thing. Most folks just think that babies cry and can be colicky and if they aren't then grunting can't be such a bad thing. But as us Reflux moms know it can be just horrible to see our babies in that much discomfort. Best of luck.
Mar 03, 2009
party of five
Thanks everyone. I realized after rereading my post that I gave incorrect info on her Prevacid dose. It should say she's taking 1/2 a 15 mg tab per day, which based on what I've read, seems pretty low. Compared to other babies, her Zantac dosage was very low too. (I can't remember what it was off the top of my head, but I remember it was half of what a friend's baby the same weight was taking.) I have a feeling my ped is just being conservative and starting out low. But, if that's the case, I now wonder why she didn't increase the dosage of Zantac first instead of just switching her to Prevacid. So, do you think it's possible the Prevacid dosage is just too low and I saw some relief from it for a couple weeks and then it stopped working? Or does that not even make any sense? I called today and was able to get her into the ped tomorrow morning, because she's had a really bad day today and I need to do something. Hopefully I'll get some answers. Anyone with experience - at what point did your doc run tests or refer you to a specialist? I hate for Sophie to be a lab rat and get all kinds of different drugs without any testing.
Mar 03, 2009
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
Photobucket
I would def ask to do the 1/2 tablet in the am and 1/2 tablet in the pm. Just make sure that you give it on an empty stomach and wait 30mins to feed. This is important so that it is most effective. We didn't need a referral for our insurance so we just started looking for a pedi GI. Then when I found the one I wanted I had our pedi office call and they got her in the next day. :) Abby had an Upper GI at 6wks. but that was the only test we ever had run. Every dr is different.
Mar 03, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I think they will start running tests when a reasonable dosage of meds is not working. Probably 15mg a day is still in the reasonable range. If you try that and baby still is struggling then I would think some tests are warranted.
Mar 03, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
15 mg is what my dd is on and has been since about 6 months (she's over a year now). It took us a LONG time to see results, but when they happened....WOW. New kid. Anyway, 15 mg is about normal, since Prevacid isn't weight sensitive like Zantac. Just keep in mind, if you haven't already, teething is going to start kicking in and that aggravated even medication controlled reflux. I'd give it a bit of time and maybe ask the doc about adding Maalox or Mylanta for breakthrough pain.
Check with your
doctor first!