Posted By Posting
Feb 28, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Jen Rackley
Jen, I remember one or both of your girls were going to have an endoscope a while back - what did they find, if anything? What food allergies do they have? How were they diagnosed? What do they take for their asthma? Do you or your husband have allergies/asthma? I saw esophagitis under one of your daughters pics - what exactly is that? Thanks for any info. Ellen
Mar 03, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Yes, Ella just has an EGD and Upper GI. She has esophagitis (inflammation in her esophagus) from years of reflux. It was pretty red and raw. The pics looked like she had a sunburn on her esophagus. OUCH.

My husband has asthma and has had it all his life. I had food allergies as a child (milk, eggs, walnuts) and am still allergic to tree nuts.

Both twins take Flovent 2xs per day and albuterol (as needed) for their asthma. They also use zyrtec and benadryl (the benadryl as needed only) for allergies. We carry an Epi-pen just to be on the safe side but have never had to use it.

Thus far Ava is the one with the most food allergy issues. She also has eczema which flares when she eats something she "shouldn't".

I don't know how I feel about the reliability of allergy testing in kids this young. To be honest, Ella tested neg for some things that I know bother her. That having been said it is possible that she is just intolerant and not truly allergic to those things. The reactions can be so similar.
Mar 03, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
That should say I was allergic to milk eggs and tree nuts and still have problems with walnuts. ;)

Ella also has what they are calling "lazy GI tract" or mild motility issues. They wanted to put her back on Reglan, I refused. She is on Miralax to make up for that issues and we have to keep her stools at applesauce consistency to keep her from getting too backed up (and re-aggravating the reflux).

They are also talking about putting her on a med called Levsin for the remaining stomach pain which could be resulting from spasms caused by an atypical form of IBS.
Mar 03, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I also wanted to say that for us Flovent has been a lifesaver. They were using albuterol all the time and coughing all night most nights. I am so grateful to their pedi for Rx-ing the flovent. They have been like different girls ever since.
Check with your
doctor first!