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Feb 25, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
DGE and other motility problems....
Just wondering who out there has experience with DGE and/or other motility issues. Our ped'n has finally booked an upper GI series for Mallory due to the increased frequency of choking. She thinks it could possiblity be motility issues and we may have to start a prokinetic (would be Motilium). Does anyone have suggestions on what to expect/look for with the upper GI? And in terms of the motility issues, other than diagnostic testing are there other symptoms I should be looking for?
Feb 25, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Hi there...our symptom of DGE was simply puking hours after eating. Zack's gastric emptying is very slow..he didn't wantt o eat a lot and three or four hours later he can still puke up his formula. We were put on Reglan which worked to some degree and then we tried Erythromyacin which did not work at all. We are back on Reglan and it helps with the "three hour later" puke, he still pukes plenty immediately after a feed. We had an Upper GI done. It looks for reflux (not a great indicator as your child has to be refluxing at that moment in time) and physical abnormalities like pyloric stenosis and a few other things that would cause food to not go down or for it to come back up. In our case the Upper GI came back showing only reflux and no physical problems. There is an emptying scan, but in my experience most docs here skip and prescribe the motility drugs first...if you get improvement in the amount or frequency of vomiting, you have your diagnosis. Good luck!
Feb 25, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Hi, I only have a second to write, but wanted to say that Jazz rarely puked. but she never wanted to eat, plus she was having silent reflux episodes all the time. Her upper GI also showed only reflux, but based 9on symptoms, she was diagnosed with DGE. The motilium worked great for us! If you have any questions please feel free to ask me....Brenda :-)
Feb 25, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Well an UGI can tell if relfux episodes are happening and it the belly is going slower but that test is NOT designed to DX those issues.

An UGI will tell you if there are any structural anomoilies present, I.E. fistulas or clefts.

To test for DGE you need to have a Gastric Emptying Scan (GES) done. I'd ask to have that added in.

JHOM and that opinion of our GI GES are pretty worthless. LOL Most GIs will go by symptoms only. IF you try that motiltiy med and see a difference they will DX your child with DGE.

The only test that is truly accurate for motility issues are Manometry testing. You really don't want that done unless you have a G tube for feeding. It is VERY invasive for a child who doesn't have one. A GI will rarely order on up for a child who doesn't have a tube.

Feb 26, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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I agree with jedd's mommy. For Quinn, she never had manometry testing or anything like that. just the UGI's, but those did show that she empties slowly because it gives a picture of the head and stomach so you can tell that she emptied slowly. Good test to at least get you headed in the right path.
Feb 26, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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Oh, BTW, my daughter was placed on Reglan (a motility drug) when she was 2 months old and has been on it ever since.
Check with your
doctor first!