Posted By Posting
Feb 21, 2009
meryne
Amanda, mother of 4 month old Audra who is an acid reflux baby.
Screaming during feedings
Hello there! I'm new to this site, but have been dealing with a refluxing baby since October. My name is Amanda and my daughter is 4 month old Audra. She is currently on Prilosec (has been since the beginning of December) and Neocate (for the past week). I need help...PLEASE! Audra has been screaming during her feedings. It has become so severe that Im really worried about her developing an aversion to eating. I just saw her G.I. doctor this past Tuesday and he says that I need to give the Neocate 2 weeks to work it's magic (he's toying with the idea of a milk allergy). She has started eating at least one ounce less every feeding. She has always fussed during feedings, but over the past two weeks, it has gotten so bad. It now takes her 30 minutes to eat 2.5 ozs. She cries and cries and arches her back. Im loosing my mind and my heart is breaking. I hate it that Im wishing away some of the most precious moments of my first-borns life because I just want to hurry up and get through this. Also, the Neocate is making her so constipated. Can someone please help me?
Feb 21, 2009
jeddsmommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
First don't be mad at your self or upset at yourself for wishing away this time. i will most gladly say that I dont' cherish many moments of Jedd's first YEAR let along the first few months. The first year with JEdd was shear heck to put it nicely. Yes, there were bright moments and those I cherish. But for the most part, we were all sleep deprived and very unhappy for it. He had other complications besides GERD though that added to the issues.

Now the toddler years, I WANT those to slow down, I don't want those to rush by for sure. It took a bit to become comfortable with this, but I am now. I've come full circle to accepting it.

OK, what kind of Prilosec are you using and what dose it is and how often do you give it and WHEN do you give it????

Jedd's had to be compounded into a suspension because it went in his feeding tube. That in and of itself causes issues. You have to have a great Pharmacy for that and we did.

Also if there is damage form the GERD it will take time for it to heal up. It can take up to 2 weeks to see a change, and that is IF the dose is high enough and is being made right.

Also, you can ask for an RX for Carafate. It's like super mylanta. It will help to coat the esophagus and make it more comfy to eat. It is given 30 mins prior to eating. It can be tricky to dose along with a PPI though because they can't be given together. so you just have to time out the doses of the two medications.

Also, a PPI is best to give on an empty stomach at lest 30 mins prior to eating. So make sure you try that as well.

As far as formulas it will take up to 2 weeks as well to see a difference.

With that much crying going on, either there is still pain present or an aversion has set in. I'd bank on the meds not being right yet and not healing up right now.

Jedd's aversion started around 16 weeks though so it is possible to have one that young. He would kick and scream and fight the bottle, he could actually kick and punch the bottle onto the floor at that age. We fed him in a bouncy seat and he could bang that up and down in shear pain from his acid.

Let us know is you have any other questions.

Feb 22, 2009
abbysmom
Andrea: Mom to 3 crazy girls!
Jackie (3/01)
Payton (9/03)
Abby (4/06) Prevacid 7.5mg (evening), MSPI, goats milk (currently trying to wean off Prevacid)
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Abby was also a major screamer/crier during feedings. We also changed to Neocate from Nutramigen at 4 months. Def give it atleast 2wks to work. We saw improvement and the longer we gave her on it the better it was. It worked WONDERS for her!! I def agree with Jessica that when you give a compounded medication it has to be made correctly or it will become unstable and basically useless. Here is a link to read up on how to have a med compounded correctly http://www.infantreflux.org/forum/forum_posts.asp?TID=4505

We had great success with Prevacid solutabs! They were also very portable b/c they don't have to be refrigerated like a compounded medication.

Abby also got constipated on Neocate. Her GI prescribed Lactulose which did the trick. We were able to wean her off of the Lactulose after about 6 months. The constipation can make her miserable so I would def ask the GI about what to give her. HTH Andrea

Feb 22, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Hi Amanda. Welcome and please don't be hard on yourself. Each and every one of us would rather forget the first year. It is really really hard. But the good news is that there are a lot of choices of meds and formulas that will help your little one. Also, lot of great advice from this site will help keep you sane.

With each month as the baby grows and develops it will get easier. Right now she is just so little.

I agree to give the meds and the formula a little more time and just do your best to keep baby comfortable.

I would definitely use mylanta ( or carafate as jessica suggested) for pain. It really does help a great deal.

Check with your
doctor first!