Posted By Posting
Feb 19, 2009
yecatsgreen
ComfyLiftBed needs a new home
At 2 and a half months my son was diagnosed with Acid Reflux and put on medication/s. Even with meds. he was miserable, especially at night. His night consisted of him spinning (litterally) in his crib from discomfort. It was heart breaking and exhausting. Most of my nights were spent patting his bottom (the only think that seemed to alleviate his pain for a while). After 9 months of medications and several Drs. including GI specialists we serendipidously realized it wasn't Acid Reflux. I changed his formula to a soy base thinking it may help his condition (thinking maybe he had a milk intolerance) and he had a SEVERE reaction! That made me look at the formula I had been giving to him previously and sure enough SOY OIL was in it, even though it was milk based. Come to find out almost all baby formula contains soy oil. Most people don't realize how much soy is in regular food and baby foods. Most people also don't realize that soy is one of the top 10 allergens. I wanted to share this story in case any of you don't feel that GERD/reflux doesn't seem to be a good diagnosis for your infant. In retrospect I feel my Dr. was very quick to slap a GERD label on my son even though he hardly ever threw up and was otherwise thriving. The fact that he wasn't sleeping and hated tummy time was enough to convince him, without hesitation, that my son had "silent" reflux. I'm not saying that ever child that is misdiagnosed with Reflux has a soy allergy, I just want to make people aware that sometimes Reflux cures aren't the real answer. All of that being said, I was desperate since my son was on every medication under the sun and still hopelessly miserable at night. We resorted to buying the ComfyLiftBed for an insane amount of money...almost $500.....can't put a price on your baby and your sleep. :) Shortly after we bought the bed we realized our son actually had a soy allergy and not reflux. This bed has only been used a hand full of times. If your child or someone's child that you know could benefit from this specialized Acid Reflux bed please contact me and I can try to figure out shipping details. I have it listed on craigslist. Please take a look. http://cincinnati.craigslist.org/bab/1040055197.html
Feb 19, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
Glad you were able to figure out what was making your son sick...hugs
Feb 20, 2009
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
glad you found your son's issue. But as a mom of a silent refluxer.... dx'ed at 5 days old with tests..... she never spit up either. That was her issue.

I am glad your son is on the mend! that is great news.

Check with your
doctor first!