Posted By Posting
Feb 18, 2009
katiesmommy or anyone else
Libby will eat if not in her highchair, but no better than when she's in it. And then it's like it's just more fun to walk around with cup/bottle/food instead of drinking/eating it... I can'tr see how much she eats that way and there's food and liquid dropped around the house. Plus, do I allow my other 2 girls to carry food with them all day too?

sometimes she'll eat well sitting on someone's lap, so I wonder why??? does it feel safer? or is it just a control/behavioral thing? Whatever the case---it's probably not a good habit to start... right?

The every 5 minutes "smoothie feeding" you're doing doesn't sound possible for me since I have two other children with needs... and I don't think Libby would accept anything that often. Thanks anyways... glad it's working for you... And so-does your feeding therapist think it's all rogh to let kids "graze" whenever they want -opposed to eating on a schedule? When we give Libby what she wants whenever, she really seems less interested in eating at mealtimes in the highchair. But in between when she's BEGGING for food/drink and you know she's losing weight befreo your eyes--its SO HARD to refuse to feed her!

Feb 18, 2009
Strong, Beautiful, daughter who is thriving beyond imagination and a healthy, happy 3 year old.
Meals at the table are generally set for 3 times a day or less, by majority of families I know. In my experience, kids with reflux do much better with many smaller meals through out the day.

Meggy sits at the table with her dad and I for meals at least part of the time. She will eat just a handful during that time, but throughout the day she does the same. For her, this works. She is currently getting her nutritional needs, just in smaller amounts throughout the day. Some kids just cannot handle 3 big meals a day. My daughter requires 5 or more very small meals or u may even call them snacks. She is still waking frequently as well to request drinks in the middle of the night. We have been able to maintain her weight this way. Of course the drink that she has is nutritionally complete. Therefore, she could drink all day and not eat and she would receive her needed nutrition.

Feb 18, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I remember that Katie would only eat dinner on her dad's lap and eating his food. We let her do it because it meant that she would eat. She did this for a couple years but did outgrow it.

She still has to eat breakfast and lunch in front of the TV. She has her own little table there.

I would let her eat whenever she wanted - grazing like.

My ped. advised against this and said that she should only eat at the table 3 meals a day.

SHe is four now and does take dinner at the table with the family.

I am not knowledgeable about feeding aversions but this is what worked for Katie.

Feb 18, 2009
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
I'm afraid rules go out the window with reflux kids. Z gets fed many meals a day, too, and all bottles...he doesn't self feed, so my lap is the place now. We do put him in the high chair when we eat dinner adn let him play with toys or veggie sticks...which he doens't eat, but messes with..
Feb 18, 2009
Tracey, mom to Katie diagnosed with GERD at 3 week.

HI there!

Our feeding specialist doesn't know how to help us at this point. Katie has many food intolerances and so she can't do the food chaining that is often suggested to help get kids to eat more. When we try the thing that she suggests Katie stops eating all together so we try what we think will work and drop what won't. No, Katie isn't supposed to graze but she has low muscle tone which extends into her jaw so chewing is quite literally exhausting for her and she doesn't have bottom molars which compounds the problem. Katie also has a very small stomach and can't eat much at one time. A few weeks ago I gave her 4 oz. of formula and then 1/3 of stage 2 fruits in a 15 minute period and she threw up because it was too much for her stomach. Not sure if this is the case with Libby but if she doesn't eat much she quite possibly could have a small not stretched out stomach.

We have been told that we are doing everything wrong in terms of getting her to eat "normally". We have also been told by feeding specialist that the research shows that she will have an eating disorder by the time she is a teenager if we follow their plan for getting her to eat. After watching her lose a pound in a month I decided that it is far more important to get her to eat NOW and worry about teaching her good table manners when she is older. Katie also prefers to eat in our laps or off of our plate and like Julie we let her do it since it means she will eat. For the smoothie thing I put some baby food in a cup and give her some right then and there and she drinks until she doesn't want more and I take it away because she too likes to dump her food on the floor. A little while later depending on how much she took I offer her more. It isn't as bad as it sounds and it means she is getting enough to eat throughout the day.

All of this is my opinion but I would avoid tube feeding for her. I completely wanted a tube for Katie even 3 months ago because she was not eating and was so crabby from hunger. I think you need to find what works for Libby to get her to eat now and not worry about teaching her good table manners. If you are considering tube feeding then I would exhaust every other avenue before resorting to that, even if it means you have to shampoo your carpet often (I do!) to get food into her. Katie does have developmental delays that we attribute to malabsorption of her previous formula so I understand the fear of delays caused by malnutrition.

Feb 19, 2009
Jordyn 11/30/04 DX GERD at 1month old
Another suggestion for consistancy we used one of thoes portable highchairs that strapped onto a regular chair that way we could take it to restaraunts and grandmas house and we even took it to feeding clinic with us.
Check with your
doctor first!