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Feb 13, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
Irritability and meds???
Does anyone else have any experience with increased irritability of their baby on meds? Mallory seems to be a lot more irritable this week, very little cooing or happy sounds and constantly making these grunty sounds like she's irritated. She only plays for a few minutes or so and I always end up putting her in her carrier. We started Zantac a little over a week ago and I thought I read somewhere that a side effect is irritability. We also have been on Prevacid liquid for about 4 weeks but just the last few days have been trying the solutabs. She's started spitting up a lot more in the last couple of days too which is unusual (she's usually a silent refluxer). I just don't know what to do - I want my baby to be happy!
Feb 13, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Shawna,

Have you investigated switching formulas? With Isobel it was hard for me to really figure out what was going on. We were changing so much and her allergies were cummulative. When I was BFing on the elimination diet she became happier and I thought, "This is how my kid should be!". Then we went to Alimentum and her behavior went down hill right around then we tried cutting out Zantac too. On the Alimentum her skin erupted in rashes all over, she had butt burn and was coughing a LOT. Now on Elecare she is the coolest baby ever. Even my mom has commented on her bright and bubbly personality. The rash is going away and we have banished butt burn.

It might be helpful to keep a calender or make a chart of food, behaviors, and symptoms to help you keep track. I know it's hard to think logically about all this new information/ new motherhood when sleep deprived. I know because I had 4 hours of sleep last night and as a consequence have to remind myself not to freak when she coughs. I wish the baby books addressed reflux and allergies more than just a paragraph, you know?

All things considered I know I'm pretty damn lucky that all I have to worry about is reflux and mspi/mspa. KWIM?

Feb 13, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Irritability is a side effect of Ranitadine (which is one reason why we dc'd it) Make sure those meds are given FAR apart. Zantac is also VERY weight sensitive, so keep an eye on that.

Just an FYI, my dd didn't even start to spit up until 2-3 months old. Then she didn't stop. Those meds have no effect on the vomit, just reducing the acidity. Also, if she's spitting up and not silently refluxing, it can be better - she's getting rid of the acid and NOT swallowing it back down for a second trip.

Even though you're still on Prevacid, the liquid and the tabs are different, so you may need 2-4 weeks to see the attitude difference. I agree with isobel'smamma about a food chart or considering a formula switch. It seems for most on here Nutramigen was the way to go, though some didn't do so hot on it. HTH!

Feb 13, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
Thanks for the advice. I was trying to avoid a formula switch until we trialed the Zantac for a couple of weeks but I don't know if we'll make it that long. I also wanted to give the Prevacid solutabs time too in case that was the problem. There are just too many variables! I just found out that the prevacid solutabs contain lactose so if she has an intolerance, that could be part of the problem. Mallory had a little bit of a rash today on her belly, under her neck and face so that's why I'm wondering about the lactose in the prevacid. We're still waiting to hear from the pharmacist about lactose in the compounded version. Sara, this may be a stupid question but what do you mean by 'butt burn'? What does that look like? And how often was she coughing? I thought that was a symptom of reflux too but is it also an allergy symtpom? Mallory is on Alimentum and has been for a couple of months. It's true that when you're on the reflux rollercoaster you have to remind yourself that there are so many babies worse off. I try to remind myself of that every day. And you are right about the one paragraph about reflux in the baby books! Although that did get me on the right track. Alessandra, when your baby started spitting up was it soon after eating or later? Mallory seems to spit up 1-2 hours or more after eating which seems weird because you'd think it would be digested by them.
Feb 14, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Allie could vomit the whole bottle up to the time to her next feed. Her usual time was, almost to the minute, 1.5 hrs after the last bottle. Also, the prevacid's lactose doesn't bother too many of the kids, but if she's really ultra-sensitive, it could bother her. The "burned butt" is a diaper rash that literally looks like a nasty sunburn right around the anus, but can spread farther, You will know it if you see it!!!
Feb 14, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Shawna,

As for the Zantac, the FDA information for it does not list irritability per se, but headache, constipation, nausea, abdominal pain, and rash have all been reported as side effects. It definitely could be making Mallory grouchy. Why are you waiting weeks to see if the Zantac works? Most people (peds and adults alike) find some result in 24 hours and major reduction of acid pain in 48 to 72 hours. My GI said I'd know in 3 days if it was going to work. What did your GI say?

The lactose in the Solutab is generally not a problem. Most kids who are sensitive to milk are sensitive to the protein not the sugar (lactose=sugar). There ARE babes who are lactose intolerant, but it is fairly rare. I will ask my pharmacist relatives about switching from compounded to the solutab to see if there is a transition period of effectiveness. I KNOW they will say stay away from compounded because quality is so variable with compounded RXs.

Butt burn is exactly like described above. It is evil stuff! My routine is to change Isobel before she eats so we avoid laying her flat after feeding. One time on the Alimentum she pooped right after feeding, maybe ten minutes after. I waited 5-10 minutes till I figured it was 'safe' to lay her down to change her. In that short time, everywhere the poo touched was burned. Almost like a chemical burn - bright red and actually puffy/inflamed. Thankfully it responded well to the Lansinoh diaper rash cream, but I was amazed that her poop could burn her skin like that! Imagine what it was doing on the INSIDE!!

Isobel has been coughing quite a bit in the last month or so but there are so many variables that it's hard for me to identify the cause. First, I've been dreadfully ill this last month (TWO rounds of antibiotics!) so did she get a touch of that? She's starting to teethe so is she choking on the excess saliva? We changed formula, was it a reaction? We've been thickening night feeds, is it too much for her? Are we using the right grain for her? SEE!?! So many questions!!

I reread my initial response to your post and it comes off a little dismissive which was NOT my intent at ALL. But the above paragraph should show you I'm in the same boat with you.... tons of questions and insecurities about what is normal for a baby and what is normal for a babe with reflux and allergies. FOR ME, writing it all down helps me tremendously. I figured out that yes, it probably is the excess saliva and that she prefers oatmeal to rice cereal (less coughing, goes to sleep faster).

Sometimes when I see a new symptom I start almost obsessing about it. I feel like it has been happening forever, that I must have missed it before, etc. but now that I write things down I can see that no, she only did XYZ for 2 days (of course that's 12 + feeds so it SEEMS like forever to my sleep deprived little brain). Writing things down and video taping have also helped me with my GI and Ped.

I got so tired of telling my family, my DH, her GI that something was wrong. I started to doubt myself!! It seemed like everyone was telling me that "babies cry", it's a "normal stage", or that I was "just a new mom" usually they would make these comments while chuckling. Argh! When I started to write things down I could SHOW myself and THEM what was actually happening. It helped me step outside my fears and doubts and really LOOK at the situation.

I guess what I'm trying to say is to trust your mommy gut. It sounds like that at this point YOU know something is rotten in Denmark but it also sounds like you're not getting the medical support from those around you. If what you're doing isn't working then you have to move to the next step.

By now, if her pain and discomfort is in control your LO should be able to sleep somewhere in the area of 6 hours or so. Isobel FINALLY sleeps that long but then we have FINALLY gotten her comfortable. In your other post you talk about sleep training... Do you mean the cry it out method? I was hesitant to do that for many reasons, including that out of control screaming can lead to a reflux episode and aspiration of stomach contents which can lead to pneumonia. Now that we're on the right food, she falls asleep within minutes after feeding. It's probably a bad habit to get into, but since I have to hold her upright for 30 minutes anyway, I might as well hold her, rock her and love on her. In a couple of years she'll be resistant to being held so much, so I'm loading up on the good baby smell now.

Sorry this post is so long, but I just wanted to make sure you didn't feel offended by my previous post, and that you know someone's here in the same boat with you.

Sara

Feb 14, 2009
mallory'smom
Shawna: First time Mom to Mallory (10/07/08). Silent reflux diagnosed at 2 months. Alimentum formula fed. Trial of Losec (minimal effect). Now Prevacid 1x/day plus Zantac 2x/day.
Oh Sara, we are one in the same. I could have written your post, word for word! I feel EXACTLY the same way with the not knowing and all the different variables (is it the reflux? Is she teething? etc. etc. etc.) And no, I don't feel like I'm getting the right medical support. I'm tired of my pediatrician saying to me 'You need to get out more" and "She'll grow out of it". THAT is your solution? I'm trying to tell you something is wrong! I right everything down too and we have tried the videotaping of the sandifer's symptoms but we felt we didn't have the 'right' footage when we went last time to the pediatrician so I just relied on describing the symptoms (luckily she did believe me). And we can't get in to see a pediatric GI for 6+months unless things go seriously downhill (ie.hospitalization). And yes, adding to the stress of the reflux is the 'new mom' syndrome - obsessing about everything and not knowing what is 'normal' baby stuff. Argh! I think I'm ready to try the formula switch. Mallory's bum has been a little red but I thought it was because she was spending so long in a wet diaper at night (we've started using cream at bedtime to help prevent that). It's not as bad as what you describe but maybe.... And I have gotten so many different answers about how long it takes meds to work - some say up to 1 month so I have been reluctant to give up too early just in case... I would prefer to stay on the solutabs just because the pharmacy we have to use for the compounded meds is SO RUDE! They have been just awful to my husband and I. We do the same thing with putting Mallory to bed - feed her, let her fall into deep sleep and then put her to bed. Unfortunately this can take up to 3 hours. It never fails that she starts crying after 1 hour and we have to soothe her back to sleep but then she'll sleep for anywhere from 6-10 hours without waking (and I'm against the CIO method even without the added difficulty with the reflux). It's so bizarre because I think if she was uncomfortable she wouldn't sleep but we're still having so much problem with feeding.... Sara - no I wasn't offended at all by your post! I appreciate the advice. Feel free to email me at shawna_sawatsky@hotmail.com so we can talk some more if you'd like. We have SO much in common with our babies!
Feb 14, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
This is from http://digestive-system.emedtv.com/ranitidine/ranitidine-side-effects.html

Side Effects of Ranitidine to Report

There are a number of side effects with ranitidine that you should report to your healthcare provider. These include, but are not limited to:

Confusion, agitation, or hallucinations, Depression (see Zantac and Depression), Heart problems, including fast heart rate (tachycardia), slow heart rate (bradycardia), and abnormal heart rhythms (arrhythmias)

Symptoms of liver problems or hepatitis, including yellowing of the eyes or skin, pain in the upper right side of the abdomen, and dark urine

Angioedema (life-threatening swelling of the throat and mouth)

Signs of an allergic reaction, including an unusual rash, hives, itching, wheezing, trouble breathing, and swelling of the mouth or throat.

Feb 14, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Here's the FDA Zantac Info

http://www.fda.gov/cder/foi/label/2001/20251s10lbl.pdf

Check with your
doctor first!