Posted By Posting
Feb 08, 2009
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
adnoidectomy/ear tubes
I haven't been posting much because the boys have been keeping me so busy. They have been nothing but sick since Nathan started preschool. Both boys are scheduled for surgery on the 20th. Nicholas for probable adnoidectomy and Nathan for adnoidectomy, ear tubes and bronchoscopy. We thought reflux was no longer an issue for Nathan but turns out it is. They have put him on Prevacid now too. Any words of advice and or wisdom from people who have gone through these procedures with their little ones would be much appreciated.
Feb 08, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds

As far as ear tubes, 3 of my children have had the procedure, and in all it has been a Godsend, greatly reducing ear infections and improving hearing in all. It was a easy procedure, with short recovery and very minimal pain. Brent had ear tube and adenoidectomy, and it was a bit tougher on him. He had humongous adenoids that were literally rottening from the reflux damage and blocking his airway(which his airways are tiny/narrow, so large adenoids was a huge issue),contributing to his apnea. It took him several weeks to get right again,mostly because of his already poor health at the time of the procedure, he kept having bleeding(Q he has severe post op fundoplication retching which kept causing the bleeding,again,not a comon issue). He doesnt eat by mouth, so I am not much help on that issue, but most kids have a little soreness, but it isnt too severe,soft diet and tylenol/motrin for a few days, and are able to be back to normal in only a few days.

As for the bronchoscopy,Brent has had plenty of those, with concurrent bronchioalveolar lavage(BAL,lung wash) and lung biopsy(lung biopsy is NOT usually done with the procedure). They can find evidence of lung disease,aspiration damage,etc. It has been pretty straightforward each time, with the first being the worst as he had the lung biopsy that time. You can expect your child to sound junky and congested for a few days after the procedure from the BAL(which is commonly done), and possibly run a low grade fever. If he starts having trouble breathing or just sounds very bad, increasing fever,then you are going to want to call your pulmo.

Feb 08, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
All of my children have had tube, adenoidectomy and tonsilectomy(speilling??). For us the tubes and adenoidectomy were a non issue. They were playing around and back to themselves the same evening. The tonsils are a bit more recovery time and require more pain meds.

All in all the surgeries helped tremendously. With Katie she still had the sinus infections and ear infections until we got the reflux under control.

Research has shown that the reflux can cause many problems in the sinuses and ears.

Now that Katie has had the ENT surgeries and her reflux is somewhat under control with the meds she is doing much much better. Knock on wood!!!

Feb 09, 2009
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
My dd had the tubes/adenoidectomy last Sept. It was the best thing we could have done for her - no ear infections since then and only one sinus infection. Halley took about two days to bounce back. She was extremely fussy the first day and didn't want to eat much at all. By the end of the second day, she was almost back to normal. They tell you to expect a foul odor for a couple of weeks after the procedure, but we never detected anything. Hope all goes well!
Feb 09, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
I smelled the odor....it WAS foul,ewwww
Feb 14, 2009
momtomaia2005
Maia had her ear tubes put in and an adenoidectomy done at the same time when she was 16 months-old. Best thing that we ever did. She was put back on Prevacid at 21 months and is still on it at 3.
Check with your
doctor first!