Posted By Posting
Feb 03, 2009
molly's mom
g-tube
I was wondering if having a g-tube placed may cause more problems down the road (eating wise). Our 6 month old daughter simply will not eat. She has bad reflux (been on meds for 4 months) and refuses most bottles. We have been using an ng tube, but now it is too hard. She fights it and pulls it out all the time. I feel like getting a g-tube is us giving up...I want her to get better and to eat on her own. Will having a g-tube make her lose all of her eating skills? How do they work? Do you do all the make up feeds at night? Are there any pros/cons I should be aware of? Also, we are scheduled for a scope in three weeks. Every other test (swallow, heart, brain, anatomy) have come back as normal. Should we still do the scope? What could it tell us? I have heard of a few different calorie boosters...can you use them with a 6 month old? We are trying the higher calorie formulas with little success. Thanks!
Feb 03, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
The scope might be really helpful if she has not already had one. When my son was scoped, the gi took several tissue samples from the esophagus and upper stomach to check for inflammation, bacteria and eosinphils. The gi had been talking with us about a fundoplication but after the scope felt that it would be most appropriate to continue with prilosec as the damage he expected to see was not present. Our doc felt that after being on a ppi that a scope was one of the best ways to determine if the level of damage warranted a fundo. I have little experience with feeding tubes. When my daughter needed a high calorie formula at four months of age, the hospital dietician showed us how to mix alimentum powder to make a higher per ounce calorie formula. I can't remember the exact ratio. Good luck. I hope her eating improves soon.
Feb 05, 2009
susiegal
Mom to Charlie - cleft palate and reflux. Meds - zantac, prevacid, mylanta and reglan.
My son lasted only 4 months with the NG tube. He would pull it out or it would come out when he vomited or coughed. The pros of the g-tube: much easier to deal with than the NG, no tube trailing out of baby's nose, you can get tubes that 'lock' into the port that goes to baby's tummy, you can do overnight feeds easily, you can administer meds through the tube easily. Cons: requires surgery (a 2 day stay for my son, no issues), more 'permanent' than the NG (the docs won't take it out until the child is 100% independent of it and has probably made it through one cold/flu season.), can limit the mobility of the baby as it isn't a great idea to have a baby on a tube feed wandering around (my son's tube has come out of his stomach a few times thanks to that.) Having said all of that it has been great for Charlie and I am very pleased we did it. As for the question of interfering with oral feeds, I am not an expert but if your daughter is not eating orally now I can't see how it would hurt. The one issue we will have to get over with Charlie is that tube fed kids don't feel hunger so they have to learn that all over again. We are just starting with a feeding specialist and will be learning more. As for calorie enhancers, is there a nutritionist you can speak to? Our GI has one that helped with mixing the formula to up the calories. We are on 27 cal/oz of Alimentum. There are other things you can use to up the calories for sure, a nutritionist would know. Happy to chat offline if you have more questions. Susie
Feb 05, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
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A g-tube might actually HELP the feeding issues since there will not be any foreign objects being forcefully shoved into the face. therefore things coming to the baby's face might be a more pleasant experience instead of a traumatizing one. Most of the time when a baby gets an NG tube, it causes more of an oral aversion for this reason alone. Plus, it holds the LES open, which makes it easier for spit up. My daughter has a g-tube, but it has something to do with her "unknown metabolic disease". She can eat so much but actually looses weight and so she depends on the extra calories she gets from supplemental tube feedings to help her thrive. we just tried a tube weaning and are now starting the feedings back up because she has lost 3 pounds.
Feb 05, 2009
molly's mom
Thank you so much for all of your information! It was all very helpful! I think that we have decided once we do the scope we will go ahead and get the g tube. I think that it is going to be the best option.
Check with your
doctor first!