Posted By Posting
Feb 02, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
Have you seen PPI's effect wears off after 3 months??
I'm trying to figure if it's the case for Matthew. He has been on Prilosec 20mg since Sep 08 and I could see the big improvements: much less vomiting, slept thru the night, cried less and was a happier baby in general. However, about 5 weeks ago, he started to have symptoms again: vomiting, waking up several times at night screaming, irritable after having formula/solid. (Btw, he has gained about 2~3 Lbs since first started with Prilosec). Part of it was because of his teething. However, his 2 upper teeth erupted 2 weeks ago and he is still vomiting, night wakings or wakes up prematurely screaming, and very irritable after meal times. He eats and drinks less. He just turned 1 year old and I heard toddler's appetite decreases as growth decreases but I don't think it's gone down that much and that fast for him. Matthew is much more active: cruising and started to walk but he eats less. He vomits about once a day now. It often happens at the end of the meals, he resists eating: sucks his thumb, coughs and throws up. I feed him the same food, same amount of food, same texture which he was able to eat without vomiting before. He's on Enfamil Gentlease, can eat chicken/meat, most veggie, rice, egg, dairy puree without any adverse reaction. His pedi checked Matthew out and couldn't pin point any problem. No ear infection, no illness. We took Matthew to see the GI nurse practitioner (we couldn't see any GI doctor in the only practice in town last week) last Tues and she was so certain that the Prilosec dosage should take care of reflux pain. She said that there are only 2 choices: Prevacid or Prilosec for his age and we could add Reglan to help with the vomiting. Nexium is not used for his age. I said that I was not worried about his vomiting but am very concerned that the Prilosec stops working and he is having acid-burn pain. She told me not to worry and that >90% of infantile acid reflux cases are not treated and most babies will outgrow it by age 2. That "2 years of acid reflux will not cause any long term damage to the esophagus". Btw, she is actually a mother of 7 year old son and 2 year old daughter with GERD. She thinks that a scope is not needed for now and EE is probably not the case for Matthew. She said if he still has reflux after 2 years old then we definitely need to do more testings. I switched Matthew from Prilosec to Prevacid last week to see if it agreed with him better this time but we saw the same side effect: restlessness and difficulty falling asleep. So we went back to Prilosec and he can fall asleep easily but still have night wakings/premature wakings. The vomiting and irritability after meal stay the same. I finally got an apt with the GI next Mon (02/09). Have you seen PPI's effect wears off on your son/daughter after a couple months? If yes, how was your son/daughter treated? What other possibility that you could think of? I much appreciate any idea or suggestion you can give me. Thanks a lot.
Feb 02, 2009
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Hi! I'm glad to see that you have a GI appt soon. I would keep things as is until then. The GI drs are more aggressive and more likely to change or increase meds. It's likely that your son *just* needs a med increase. Hopefully you'll get good info from the visit Monday. I don't agree with some of the stuff the ped said according to what I've learned from other moms here. Maybe her kids' cases weren't as severe...who knows.
Feb 03, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I am happy that you have an appt. to see a GI. That is so important. He/She will have more knowledge about what meds & doses he should be on. He may also suggest a diet change.

My suggestion to you is to write your story down on paper as clear and simple as possible. Also, write down every question you can think of.

In my experience when the doc comes in, it is a whirlwind. They want to get in and out and you are done before you even know what happened. You have to be well prepared and don't leave until you feel like you have gotten what you need.

Check with your
doctor first!