Posted By Posting
Feb 02, 2009
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
Blueleopard - Some questions from Rory's Mom
Hi Ellen!

I have a few questions for you, if you don't mind helping me out when you get a chance.

I was wondering how old Eric was when they diagnosed him with his allergies? Particularly the milk allergy? Was he scoped prior to the diagnostic scope for EE?

We just found out at 22 months that Rory is definitely allergic to eggs. I feel like she could possibly be allergic to milk, but I have always been told no by her doctors because her stools are normal. Mind you, she never had a solid stool until 18 months, but it was not really diahrrea. Just once a day. But given her massive vomiting in the first 6 to 8 months, her recent skin ickies and the fact that she is failure to thrive, I just wonder if we have missed it, kwim? Did Eric have all the nasty reactions? I just wondered how old he was, because everyone tells me I would have known by now if she was allergic to milk.

I know she doesn't have EE, but I question the accuracy of the scope and biopsy for Celiac considering she barely ate food at 16 months, and her doctor doesn't feel the need to scope again. I might be taking a shot in the dark, especially since her only symptoms are excema, failure to thrive, and lately, really outrageous behaviour....but it all got worse when she started eating, kwim? I guess I just wanted your opinion on the matter, because I know you've been through hell with Eric and are pretty well educated on the matter.

It's been suggested by friends that I try to eliminate the top 8, but because she doesn't have "typical" reactions and is only 19 lbs, I don't see how I can do it. Her allergist said it is rare to see egg allergy alone, but didn't suggest more testing. I wish he hadn't said that, because now I wonder if she has more than just this one. Anyway, if you get a minute, I'd really like to pick your brain. I know Eric's allergies are severe, and Rory's is not (she does have an epipen though)....but I thought you might have come across some material or info that might have suggested some of the subtle ways in which allergies can affect kiddies. THANKS!!!

Feb 02, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
We have been told sevral times that our LO is not alergic to milk acording to alergy testing but we feel different. She has extreeme behavior changes when getting the slightest ammount of milk. She also will vomit if she gets too much. I recently found this article that might interest you hope it helps. . . . Pasted from
Feb 02, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
that didn't work http://www.parentsofallergicchildren.org/reports_on_reactions_to_food.html
Feb 02, 2009
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
wow, I really like that site!! Thank you so much. I might use some reference material to plead my case with the allergist, lol. I nearly choked when I read that mouthbreathing is a sign of allergy....this symptom has bothered me for a long time. Her doctor said it was a habit she retained from her reflux days...just Rory. She also sleeps tons, has the circles under her eyes...she absolutely cannot concentrate on anything longer than 2 minutes. I have friends with kids the same age, and they say their kiddos are watching movies and stuff....yeah, right, Rory can't sit still. She is also very pale most of the time, the doctors always note it, but because I'm pale they brush it off. We're still waiting on the results of her iron and thyroid test. Like, the frustrating thing is that we don't see immediate behaviour changes or anything....because her diet is so varied, we'd have no way of knowing if it WAS food....she is 2 after all. What bothers me is that she has always been a "good" baby, and it seems now that something is bothering her. She constantly cries that she is itchy, cries in her sleep at night, but doesn't wake. That article makes me wonder if she really has become toxic from allergy. The hidden allergies. Thanks again ((HUGS))
Feb 02, 2009
mommy2max&lucy
Patti, mom to Max (3/04) with EE and chronic sinus issues; Lucy (6/07) with reflux
Hi...I just wanted to jump in on this post...hope you don't mind. Our son has a milk allergy and EE. He has been allergic to milk his entire life yet never once has had blood in his stool...I get very angry when doctors say this is the only symptom of a milk allergy. His stools were for the most part completely normal even when he was on milk. He finally showed up positive to milk at 2 years old...but we had taken him off much earlier because we couldn't handle the restless sleep and erratic behavior...plus he was diagnoses with EE along the way. I absolutely think that you are right to follow your guy...several of the symptoms you are describing sound like allergy to me. Even if our son has an offending food (like chicken) he becomes a looney-toony...unable to concentrate and starts becoming aggressive...mind you, he is a star student and very calm and laid back when he is only eating his safe food. Max's behavior is the first thing to go when a food doesn't agree with him. He is just now at the age (5 next month) that he can start verbalizing specific pain even though he is normally very talkative and has a great vocabularly. I think sometimes our kiddos feel so crudy that they can't think beyond the pain. Good luck and keep following your gut!
Feb 02, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
The one doctor sited in that article has a book out and works in Buffalo NY I am going to get the book as soon as I get to the store it is called ........................................................................... "Is This Your Child" by Dorris Rapp MD Good luck pushing with your allergist I have been fighting this battle with ours for 3 years. Many allergists seam to think that if there is no reaction to the allergy tests that it isn't an allergy. And although she has never had a positive allergy test accept to oats and carrots both of which she seams to tolerate she is on a load of allergy meds and still breaks out in hives quite often. Oh and they still have in her chart that she is allergic to milk but still refuse to admit it. We also have the problem with bananas severe vomiting but they say no allergy.
Feb 02, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Michelle, I would like to weigh in on this subject also, hope you don't mind. Adriane has so many food allergies. Some are worse than others. She too has pale skin, dark circles and restless sleep. The behavior is something that I really never thought about being a symptom until after we had taken her off all her foods and started back. I agree with Max's mom if it isn't an anaphylactic reaction or even immediate reaction but perhaps delayed or less noticable reaction then we see a change in behavior.

This is something I feel very guilty about now. I really thought Adriane was a hateful baby and had a horrible disposition. I thought that was just her. This was when she was on baby food and didn't have as many reactions as she does now. When the allergist took her off of everything we actually saw her true personality. She is actually very affectionate and funny. She is still very independent but that is fine as long as she isn't doing it hatefully and being mean to others. That is one of the reasons we took her off of cheerios. It doesn't have enough of any of her allergens to make her have an anaphylactic reaction but it has enough for it to cause excema flare and the bahavior issues. I hope you can get someone to listen to you and that they will go ahead and do a skin test or something. -Amanda

Feb 03, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi Michelle, Yes, unfortunately I'm starting to know more about food allergies than I ever wanted to know! To address some of your questions: we had a big problem with milk 2 weeks after Eric was born. The hospital completely missed it & did unnecessary surgery on him, however. His worst symptoms were projectile vomiting & diarrehea (no blood). It wasn't until we switched him to Nutramagin that he slowed down with the diarrehea & vomiting. However, he continued to be unhappy. Trouble really began after we started him on solid foods at 6-7 mths. He no longer just cried, it was more of a scream. His behavior was horrible & he didn't grow well. At 11 mths. we did some reflux testing (upper GI, motility testing, & endoscope w/biopsy). At this time, he only had 3 eos. in the esophagus (typical for reflux only). As time went on, we took him to an allergist who tested him for milk & to our surprise, found he was also allergic to peanuts and eggs. By age 2, the seasonal allergies were kicking in, as well as asthma. What really got to me (at around age 2 1/2) was the amount of choking he was doing while eating. So, I pushed for another endoscope with biopsy & we found the e.e. (now had 36 eos. in the esophagus). So, not to just retell Eric's whole story - I wanted you to see the progression (in the beginning every Dr. said it was "just reflux."). I could have saved my son about 2 1/2 years of hell had I known any of this. ***Important - keep in mind that the only conclusive testing of food allergies is the child's reaction(s) to a particular food. There are delayed food allergies that will not show up on a scratch test or RAST (blood) test. Those tests are more useful for the revealing the type of allergy that you could need the EpiPen for. I highly second the book mentioned "Is This Your Child?" by Doris Rapp. I get it from our library. She gives case histories & a wealth of info. on unrecognized allergies. I hope you can get to the bottom of it all. It is very difficult finding a suitable diet with food restrictions, but when you see the skin clear, the behavior improve, the stools normalize, & the growth more on target, it is SO WORTH IT. Eric has two bottles a day of Neocate One Plus & then odds & ends of what he is currently allowed to eat. The Neocate really helps him grow & get a lot of his nutrients. Too bad he'll probably be on it in high school. Take Care, Ellen
Feb 03, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Just wanted to add that the eye circles, paleness, skin problems, mouth breathing, etc. are all major Red Flags for allergy. My 9 yr. old daughter has tons of seasonal allergies & trouble with milk (in her case caused major constipation) & exhibits these signs along with little bro Eric. El
Feb 03, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
For what it is worth. Our holistic chiropractor said that parasites can cause the dark circles and agitated behavior. Apparently they are hard to diagnose through western medicine because it all depends on when the eggs are hatched.
Feb 03, 2009
michelle&aurora
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
I just wanted to thank you all for sharing your stories and allergy info with me. I can't believe how much you and the babies have been through. It helps me to know that discovering allergies is a process that takes time. I was searching through old posts, and they revealed a lot. Rory consumed eggs quite frequently before the vomiting and scary episode happened, so it reinforces the notion that it takes time for an allergy to develop, and also reinforces the notion that I DO NOT want to add ANY egg back into her diet. I also think that another scope may be in her near future. She's been off ppi's for some time, and has been eating for quite some time. I'd like to know definitively that 1) she actually doesn't have GERD anymore and 2) that she does not have Celiac disease. With all the night coughing and ear trouble, and up and down eating, I'm suspecting reflux...have been for a while but wouldn't admit it.....The egg allergy confirmation has opened my eyes BIG TIME!! Doctors are not always right. She needs me to keep pushing...and that is what I'm going to do! Thanks again for all the help. ((HUGS))
Check with your
doctor first!