Posted By Posting
Feb 01, 2009
bsmom
Sleeping options
I have a 2 month old baby boy who has been diagnosed with GERD. He was born at 33 1/2 weeks GA. He had trouble latching, so he's been on formula since 2 weeks of age. After trying every formula on the market, we've decided that Similac Sensitive RS is the most effective. He is also currently taking 0.8 of Zantac 2x day. The doctor wanted to switch him to Prevacid, but it was going to cost us $150/month after insurance, which we cannot afford. He is doing better (less screaming on the rice formula), but currently sleeps in his carseat and still has painful reflux about 5 minutes after eating at every meal. I am concerned about the long-term effects of the restraint on his physical development from the carseat and wondered if you have any recommendations on the best sleeping option that would allow him to stretch? I am concerned about SIDS and want to be sure that anything we purchase will not put him at a higher risk. He does not like to be on his stomach (I think he's used to back-sleeping now). I've been looking at the Tucker sling and the Amby Baby hammock, but wanted some advice before making a purchase. Also, any suggestions on medication options would be appreciated!!!
Feb 01, 2009
engin117
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I never tried the Amby swing, but I have thought about it many times. It looks like it would be comfy and helpful. We used a carrier which is shaped like a carseat, but a little more spacious.

We were able to prop her just right in there and she had plenty of room to stretch. She out grew her carrier, and I wish to this day that I could figure out how to build a bed big enough of the same design, or find a bigger carrier.

I wish you the very best and hope you find what works best for your little one.

Feb 01, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
I bought the Amby and my DD has never even once slept in the darn thing! However hard my DH and I tried we simply could not get the angle right - it always crunched her up like a shrimp which of course just caused more reflux. We're keeping it around in case we're insane enough to have another kid.

The thing about the carseat is that they tend to crunch babies mid sections - bad for reflux. Have you tried a vibrating bouncy seat? We have the Fisher Price rocker that supposedly transitions from infant to toddler. No bells and whistles, all it does is vibrate but it does offer multiple angle options and is big enough for stretching room. We use a cloth prefold diaper to soften the edge of the seat, but otherwise it's perfect for us. We use it to nap if she's fussy. HTH

Feb 01, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Also, have you asked your doc about other med options? Zantac is very weight sensitive - dosage should be calibrated often. We do Prevacid, but Carafate helps us through the rough patches. Good Luck!
Feb 01, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
In the early days we did whatever we could to get sleep in our house which included a combination of sleeping in his swing and our bed. I wouldn't worry about any developmental issues at this age. If it works then let it be. The time will come very quickly when he won't fit in his carseat and then you can cross that path. My son slept in the swing for almost 5 months and had no developmental issues. I am sure others will chime in about the products you are thinking about. We used a wedge in the crib when we finally got him to sleep in his crib but nothing really helped with sleep until we got the reflux under control at 16 months. Will your insurance cover Nexium. My insurance at one time would only cover Prevacid and not Nexium and then they switched and only covered Nexium and not Prevacid. It may be worth asking about. Good luck and I hope you find something that works for your son to sleep in.
Feb 02, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
My son used to nap in the swing during the day and I prop him up with many layers of pillow at night. I swaddled him real tight until about 4 month olds when he was strong enough to break loose and started sleeping on his tummy. I also did as much tummy time as I could, about 1hr or so after he drank formula.
Feb 02, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
We used the vibrating bouncy.

I would look into your medicine options. See if you can get one of the PPI meds approved by your insurance. Sometimes you may just need a pre-authorization from your doc to get a med put on the approved meds list for your child.

Feb 02, 2009
bsmom
Thanks!
Wow! This forum is amazing! Thanks for all of your feedback. I think I may try the AR pillow (cheaper than tucker sling) to prop him so he can stretch out in his crib. Sounds like most of you have had luck with propping... Has anyone tried the AR pillow? I did some reading last night and found that sleeping in carseat is supposed to increase SIDS risk because their heads can fall forward. Not to mention crunching his poor little tummy. We're going to work on the tummy time. I try propping on towels, tummy boppy, etc, but he still gets pretty angry about the whole situation. If anyone has any advice for working on tummy time, I'd appreciate all the help I can get! I appreciate all the advice on the PPI's too - I'm calling the pediatrician as soon as they open to ask for a switch. I feel like they are just clueless sometimes! It's so nice to have some support and recommendations from people who have been there. Thanks so much!
Feb 02, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Tummy time was actually very soothing for Katie. We would lay a blanket on the couch, lay her down and massage her back. This is how she was most comfortable.
Feb 02, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
We used a vibraqting bouncy for the longest time in fact I have pics of her sleeping in it attached to her apnea monitor. We struggled after she outgrew it tho. We were given the tucker sling after her ph study when they told us to raise the bed for her. I didn't think it looked comfortable tho. We ended up buying the comfy lift bed when she was about 6 months old and still use it today at age 4 it does fit in a crib and on a toddler bed frame but initally we just put it next to our bed. She is finally outgrowing the toddler size and we are looking to get the bigger one so we can transition to a bigger bed. It does cost alot. When we bought our first one it was not being paid for by insurance companies but we were able to write it off as a medical expence come tax time. I wrote a letter to the makers recently about insurance coverage and this is the responce I recieved... ..... . . . ................................................................................ Hi Erica, There has been some instances that a health insurance company has paid for the special needs bed. It depends on the written policy you have from them in the Durable Medical section of the policy. You could call your health management insurance company, they can probably give you an idea about how much they cover or if it has coverage. If so, then they will probably ask you to go back to your doctor to proceed to have him/her write a prescription with a “letter of medical necessity”. You may have to pay for the adolescent bed first then turn-in a receipt with all your paper work. If you are in a situation financially, there are government programs for children in need of medical equipment that will fund the purchase, for example the ECI (Early Childhood Intervention) or Medicaid program in your state.............. ......................................................................................... Hope that helps. Good luck
Feb 02, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Isobel would scream and scream during tummy time. We stopped even trying for a while It just wasn't worth putting her through it. We finally just now ( at four months ) can get 15 - 20 minutes in without a fit. She seems to be a tic behind in head control and rolling over, but not enough that I'm concerned.
Feb 02, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
I have a four month old. We bought an ar pillow when she was four weeks old. It has been a lifesaver for us. At the sitters, she uses a vibrating bouncy seat that reclines when she takes naps. She also loves to be positioned on her tummy over the boppy or a towel.
Feb 02, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
I don't know anything about the tucker sling. I got the ar pillow because it was less expensive.
Feb 05, 2009
rileysmomma
Daughter diagnosed with severe GERD at 2 1/2 months had it since birth, tried reglan, settled on prevacid 2times a day for 4 months...had Upper GI's,ultrasounds,labeled failure to thrive, but finally found a solution with doubling formula calorie intake. We tried formula after formula and Nutramigen was the only solution. With time, and wieght gain and feedings every two hrs she finally got to where she needed to be. She still has occasional reflux moments but no where near as bad as what they were months before.
we used a boppy pillow for riley at times and we coe slept at first b.c I was breast feeding but the reflux flung that idea out the window... but months later she was still there b.c I had afear she would choke or soemthing... later I moved her to the top of the pack and play (bassinett part) and kept it at the end of the bed so I could hear her and check on her. I thought about teh swings, but worried she may never use it... and during the day she liked the nest swing it would craddle her like a car seat but allowed for more movement. and tummy timewas very rough for riley... but i didnt push it, they kept saying make her go on her tummy but i knew she hated it, and i have no regrets shes crawiling around just fine now, and is ahead even of where she should be. I think the ped's tell you jsut the basics but every child is truly a case by case scenario. Best of luck and hope things get better soon =)
Feb 07, 2009
bsmom
thank you
Thanks for everyone's responses! I wanted to update that we ended up buying a Tucker Sling. We got it yesterday and Bennett slept on it last night. It's amazing - he is a much happier baby!!! He was fussy all day, and then I put him on there, and he literally started smiling immediately. It has also helped with his bowels, he was a little constipated before but has had 3 bowel movements since he went to bed last night. I will let you know if this is just a "honeymoon period", but for now, it really is amazing!!!
Feb 09, 2009
bsmom
Honeymoon is over with the Tucker Sling
Just wanted to follow up... Poor little Bennett has gone downhill since our first night with the Tucker Sling. Guess it must have been a coincidence that it worked so well that first night. We increased his dose of the Zantac and that didn't seem to help, so I broke down and paid the $150 for one month's worth of Prevacid. I'll keep you posted in the next couple of weeks.
Check with your
doctor first!