Posted By Posting
Jan 29, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Two sucks, yell. Two sucks, yell
Hi all-

For the last 6 weeks or so Isobel has been a total pain in the read to BF. She latches on just fine but then sucks twice, turns her head away and yells/cries. Sometimes she crunches up her body and farts at the same time as the short yell. Then, she turns back to the breast, latches herself back on and begins the process again. She is not always gassy, only maybe 40% of the time she fart/yells. It takes 20 minutes or so to find a position or for her to get comfy to actually feed and then it's only for about 3 minutes a breast. It's starting to get really tiresome.

Any ideas on what this is or how to solve it? I think her reflux is in control as she doesn't scream, just a short cry. But then who knows, I don't! She is still in the 40th percentile for weight, but the last two monthly visits she has started slipping down the scale and I'm starting to get concerned that we're heading toward a bigger problem.

Jan 29, 2009
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
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Could it be it is aversion, just not severe. Maybe it is hurting to drink. I would def. consult the pedi. just to be sure.

Sorry that I don't have more useful info.

Jan 29, 2009
mommy2max&lucy
Patti, mom to Max (3/04) with EE and chronic sinus issues; Lucy (6/07) with reflux
It sounds like it hurts her to swallow...does she have any cold symptoms? Could she possible have a sore throat? I didn't BF so I can't help in that department. Good luck!
Jan 29, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
It's been going on for well over a month now, but maybe it does hurt to swallow. I'll have to check into that. Any BFing moms have experience with this behavior?
Jan 29, 2009
stickybean
I am Jacky, mommy to Joslyn Olivia (April 2008) and Katelyn Isabel (November 2009).
Joslyn was dx'ed with Silent Reflux with breath apnea at 5 days old. VERY SCARY!
Katelyn is a spitter reflux baby. Started at 3 days old as well. (Both were/are breast fed.. symptoms came on when my milk came in).
Joslyn has been reflux free since she was 12 months (suffered poor weight gain for a few months) and Katelyn is now on Zantac... waiting to see if it works.
Joslyn would do this... but not take 20 mins to latch on. She would suck a few times then pull off and scream. Are you sure it is not her reflux pain? Have you tried Maaloox when she does this? That helped Joslyn like an immediate fix.

Joslyn is and has always been gassy! When she bends down she lets out a rip!

It does not bother her though it never has. When i say gassy.. I mean probably 50 times a day! not kidding

She still nurses for 3 mins per side.. I am lucky to get 4 mins on one side.

Have you tried pumping and offering it in a bottle? Joslyn gets 2 bm bottles a day. That seemed to help when she was having pain during bfing. I would pump and offer it in a bottle when she was having a hard feeding.

Hope it gets better!

Jacky

Jan 29, 2009
jordyn'smom
Erica
Jordyn 11/30/04 DX GERD at 1month old
I am so sorry you are going thru this. I Hate to even mention this because I had a break down in the doctors office when I was told this. I was one of thoes moms that so looked forward to breastfeeding as a bonding between my daughter and myself. My sister had a baby 3 months prior to myself and it just came so easy for her I thought it would be the same for me. Well as luck would have it it did not. DD was 6 1/2 weeks preemie and they wouldn't even let me attempt to BF initally. They said she wasn't strong enough so the started giving her formula. The day after she was born I sent DH 3 hrs away to by a madella pump so I could start pumping. If I had to give her a bottle it was still going to contain BM. By the time we left the hospital she was getting partial feeds from the brest and most from the bottle. Which meant BF then bottle then pump for the next meal. Eventually I was tolld I could go to the breast exclusively. I had to use a sheild for latch problems but we still didn't seam to catch on. And go figure in the little town I lived in there was no Lac consultant not even at the hosp. We perservered. I just kept supplementing with the bottled BM that I pumped. It got to the point where we would both cry thru feedings. Finally I was told at the functional feeding clinic that we went to that she had a feeding aversion to me. The reflux was so painful that she started to associate me with the pain. I continued to pump until she was 24 mos old and started on neocate because she was FTT and her old GI wanted to do J tube placement and we wanted to avoid that at all costs. You may want to try pumping and using a bottle to feed and maybe even let someone else help with feedings. It may help. I didn't succed at BF'ing but if you just need a sounding board I would be glad to listen. I wish I had found this board back then. I used to call my mother at work crying and asking what in the world I was doing wrong. She was the one that finally called DD's pedi and said there was something wrong with my daughter and they needed to figure it out. They called and for the first time heard the screaming I had described so many times before. The next day we had a GI appt and DD's pedi ran the reflux / apnea clinic for our area. Sometimes we all need a little help finding help. Now I know I am my daughters biggest advocate and I know that is the best that I or any of us can do. Good luck HTH
Jan 30, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
I went through something very similar with my son at the same age. ((HUGS)) to you -- it was horrible, and I felt like I was poisoning him at every nursing session.

From my experience, I would suggest first making sure that the reflux is under control. If Zantac is what she has been on for acid pain, be sure the dose is still correct for her size, and be sure to let your pedi know that she may be having a flare up. I also wonder if over-active letdown (OALD) could be at play. OALD is especially challenging for reflux babies, so if you find your breasts leaking milk, if you can very easily express milk by hand, or if she has green poop, I would strongly suspect OALD. If that is at play, you can try just expressing a bit of milk by hand, into a towel or a cup, before nursing in order to reduce the force of the initial letdown. You may also want to visit the La Leche League Mother to Mother Forum, where you can get a lots of information about breastfeeding generally, OALD, and breastfeeding babies with reflux.

As I said, I felt like I was poisoning my son when we went through this, but I am very happy and grateful to be able to say that we made it through the rough places and have been nursing for 21 months now. Hang in there if you can, but know that if breastfeeding becomes too difficult for one or both of you, you are absolutely not failing her to stop. Breastfeeding a reflux baby, while the best option when it is possible, is simply not always possible. I hope you will go on to enjoy as long a nursing relationship as you both want, but I hope whenever, and however, it ends, you will be compassionate with yourself, knowing that you have been, and will continue to be the perfect mother for your little one. ((HUGS))

Jan 30, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Well, tonight I gave her some carafate early in the evening and pumped the next two feeds. Much to my surprise I only got 2 - 2.5 oz each time. No wonder she's mad! It's weird though because she never acts hungry and I'm not sure if this small amount is an anomaly as I've been sick the last few days and on antibiotics. She did latch right on to the bottle and stay there though, so that's something to ponder. Also of note is that I did have OALD but have not since late December - right around the time all this started.

I really hope I don't have to pump all the time! What a hassle! But I will for the next little bit to see if my supply increases. Thanks for the suggestions ladies.

Check with your
doctor first!