|Not sure where you are located or if you have the option, but I am more than a little thankful that we took our daughter to John Hopkins in Maryland. We see a GI there. |
My daughter is also 18 pounds at 20 months. However as they pointed out to us there, she is growing at her own pace. She is growing more slowly than most docs. like, but for the pace that is right for her as an individual.
My daughter has eosinophilic disease. It is mostly in her Lower GI track and the fundo which was suggested to us as well could have caused her a great deal more harm than good.
Also, our local pedi. at the time had told us he could force us to put a G-tube if we didn't agree. We felt there was more to it and that if her pain were resolved, she would eat and therefore grow. Then, he said fine she will die and u will go to jail. That was in Sept.
She is now 20 months old. She has grown a few inches and gained a few pounds on Ultracare for Kids cherry/banana flavor. Meggy is a beautiful, strong, delightful, bright child. She is ahead developmentally in everything except gross motor skills.
She is hypotonic, but due to Central nervous system problems. The fundo certainly would not have helped hypotonia.
What we found was that infant formula was certainly hurting our daughter, as was many many foods. We are still in the midst of figuring it out, but we feel confident that we did the right thing by seeking the opinion of a failure to thrive specialist at John Hopkins and continuing with them from there.
If you have access to her growth charts, I urge you to take a look at how she is growing. Is she growing slowly but surely, or has her growth completely leveled off? Is her weight the only thing that is concerning, or are there other things involved? Have things of such nature of Delayed Gastric Emptying been eliminated? Has she been tested for Eosinophillic disease or other allergies? Does she deal with daily pain.
From my understanding, the Fundo doesn't fix GERD. It may even make it worse. I am not trying to persuade u to avoid surgery completely, just to know your options, know your risk, know that it is isn't an instant fix.
I think at 20 months, it is hard to tell how much of her disinterest in food is normal and how much is health related. If I remember right from my daycare days, it is common for kids this age to be what is considered very finicky eaters.
I watch my daughter and it seems food hurts her. She is terrified of eating and yet desires to eat. She will stick a bite up to her mouth and then turn her head and say NO-OWIE.
GERD has been ruled out for Meggy. There was no damage in her esophagus this last endoscopy. The nodules were gone. There were no visible eosinophils in the esophagus. Yet, we still hear this gulping, we still see tummy spasms, and she still has food aversion. What she has-Eosinophilic disease-mimicks GERD in so many ways. A fundo would not have helped in the least.
I would ask the surgeon who is pushing for this-What are the success rates of the surgery? What is the probability it will have to be redone? What benefit and what risk will it give my child? How do the benefits of waiting this out and checking for other things like allergy, and otherwise compare to the benefits of the surgery? Also, ask the surgeon if it is standard that they want to do fundo for every child having G-tube. Is there possibility you will have the same outcome or better without the surgery than u would have with it?
Doctors are not our enemy, and are truly required for our children to maintain health. However, they do not always give us the full story, or all the pieces of the puzzle. They do not always have our best interest at heart.
The decision is yours to make. Just follow your Mommie instincts. I believe deep down, we know what to do as mothers. Sometimes doctors have and agenda, a standard treatment, a way that they are used to working, that does not allow for individuality. Sometimes docs. use scare tactics so that we will do what they want, not necessarily what we know is right.
Ask lots of questions. Know your options. Make the best decision for your child as an individual.