Posted By Posting
Jan 27, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
EE Links

http://www.jpeds.com/article/PIIS0022347603002737/fulltext

http://www.jacionline.org/article/PIIS0091674903025314/fulltext

http://www.medscape.com/viewarticle/536496

http://www.todaysdietitian.com/newarchives/may2006pg28.shtml

http://www.medscape.com/viewarticle/560089

http://www.gastro.org/user-assets/Documents/08_Publications/06_GIHep_Annual_Review/Articles/Gonsalves-Hirano.pdf

Jan 27, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
Thought they would be helpful to some of you, a few I just got access to...
Jan 27, 2009
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Thank you. U r always so kind, and helpful.
Jan 27, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
THANK YOU!!!! ALWAYS APPRECIATED!!!
Jan 28, 2009
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
THere is a lot of great EE and other eos disorder info at **Cincinnati Children's Hospital website (look under disorders - E for Eos.) **APFED (partners for eos disorders) **kidswithfoodallergies.org have forums specifically for kids with eos disorders, kids on few/no foods, formula questions forum, etc. ** parent-2-parent
Check with your
doctor first!