Posted By Posting
Jan 27, 2009
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Meggy update
So Meggy has E.G.I.D. or eosinophilic disease per the biopsy results. She has the eosinophils everywhere except the eosophagus. She also has the lymphoid hyperplasia, and slight anemia.

Her lab results did show good nutrition though. The doc. who performed the endoscopy and colonoscopy did tell her GI that she was impacted though. So, he wants us to do miralax on a daily basis from now on.

We will be following up with the allergist to start diet modifications and decide a course of action for treatment.

Jan 27, 2009
mom to 4 kids with probable
Mitochondrial Disease
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
Connective Tissue Disorder,
Visceral Hyperalgesia, and more
Many meds
Sorry to hear this, but at least not you have confirmation so you can start treatment. (((hugs)))
Jan 27, 2009
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
I hate welcoming people to the EGID club, but at least you have support thru us and hopefully a place to start with Meggy's treatment...HUGS
Jan 28, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
It must feel good to have some answers. At least now you can move forward knowing what you are dealing with. It has been a long road for you. Hope the allergist can help with the diet.
Check with your
doctor first!