Posted By Posting
Jan 25, 2009
sheldrap
Looking for Input
My 3 1/2 month old son has been struggling with GERD for a couple of months now. He is on 1.4ml of Zantac 3x per day, which helps intermittently. He has no problem maintaining and gaining weight, but our life on a daily basis is pretty rough. He has good days and bad days, but the bad days are really bad. He spits up almost everything, and doesn't sleep during the day at all. I have several questions that I would love input on from anyone: 1. Our Dr. only has me thickening his formula with 1 tsp. per ounce. Should I be using more cereal? 2. Our Dr. thinks I'm crazy, because Aidan sleeps fine over night without any spit up, but during the day sometimes he doesn't even make it 5 minutes before spitting up. I believe he sleeps so well at night because he is exhausted from not sleeping during the day. Does this happen to anyone else, and any suggestions for getting him to sleep more solid during the day? 3. Our Dr. is very hesitant to send us to a GI specialist. She says he will only put us on some strong meds that are not approved for children and there is no proof it even works. She says the only thing she herself can do though is give him Zantac. Does this sound right? 4. Has anyone heard of switching to Goat's milk to ease GERD? That's it, as you can see I'm new at this, and very frustrated. Aidan is just always in pain while eating, after eating, and continues to spit up up to 3 or 4 hours after eating. Although he has no problem gaining weight right now, he is starting to avoid eating all together and I'm starting to think we need better medical attention than the Pedi is willing to give us. Anyone's input is much appreciated. Thanks!
Jan 25, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
Welcome to Pager! I will try to answer some of your questions. I have an Aidan too and much of your story sounds familiar. #1 You may want to try a thickener like Simply Thick instead of cereal. Many refluxers can not tolerate cereal at all. It totally makes the reflux worse. #2. I definitely think they can be totally exhausted and sleep at night. In order to get my Aidan to sleep during the day we would leave him in the swing or in a sling almost all day. I wore him every where. It was one of the few ways I could get him to stop crying. #3-I honestly would find a new ped if they told me Zantac is all they could do. GIs put babies on meds they need and every med I have used has been approved for use in infants. THere is lots of proof it works. I would demand to see a ped GI and if they won't send you to one find a new doctor. #4-I wouldn't switch to goat's milk. Nutritionally, it isn't very sound. If you think there is an allergy issue try a hypoallergenic formula like Nutramigen instead. All of these issues a GI can help you with. Good Luck and keep coming here for support. The ladies here are great.
Jan 25, 2009
mom2halleyann
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
I agree with everything Mary has suggested - particularly as it relates to seeing the pedi GI. There's no reason for your pedi's ego to get in the way of your baby's treatment. We had excellent luck with Nutrimigen when we switched my daughter to formula...it's easier on the refluxers' systems because the proteins are broken down. A word of warning...even with effective treatment for pain, the vomiting may not go away. If it is not allergy related, the main goal is to control the pain. We dealt with massive vomit until 9 months of age, but as long as my daughter was comfortable, we just kept plenty of changes of clothes at hand.
Jan 25, 2009
sheldrap
Follow Up
Thanks for all the advice. I forgot to mention he is already on Nutramigen, and has been since about 4 weeks old. I don't mind the massive spit up, as you said, we just change him a thousand times a day. I'm more concerned with his pain, and lack of sleep. They said he is supposed to be sleeping 15 hours a day, and we are lucky if we get 10! He looks so tired all the time, big black circles under his, red and sooooo tired. He is just so uncomfortable. He falls asleep so easily, but the minute you put him down (mattress is elevated) he spits up and then he's up! I feel so bad for him. He is always crying right after he spits up too! You can tell it's just so painful. Just want to do something for him.... Thanks again for the advice....glad to know I'm not the only one struggling out here! I think I will call the Dr. tomorrow and as for the GI specialists name. Thanks again!
Jan 26, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I have been reading posts lately but haven't felt compelled to respond until now. I agree with the pp but since you say that he is already on Nutramigen then you definitely need to get into a ped GI. We put this off too long. Adriane would not sleep at all at night. She would scream all through the night until about 3 weeks later. Then she started sleeping some. At first we thought things were getting better but the days were awful. We switched formulas so many times. I think it was up to 5 by the time she finally stopped eating altogether and was in the hospital under 5 lbs and dehydrated. Granted our doc was working with us and trying to figure things out but it was above her head. When she was admitted we finally got a good GI. I don't want you to have to do through that. If you can self refer then do. You can always ask for info from the ladies who are on here in your area. Just tell what area you are in and someone might be able to help. We can't list docs specifically on here but you can exchange emails or something and get a good referal hopefully.

If you feel that something is wrong you have to keep persuing it. Our GI just keeps telling us that she is as good as she is going to get. No more tests I suppose but I'm not happy with that and we are getting a second opinion.

Oh yeah, she has severe food allergies and is MSPI (milk soy protien intolerant). So, even the hypoallergenic formulas were hard on her. The dark eyes sounds like he could have some sort of allergy but that is just my exeperience. I hope you get this figured out. You are your lo only advocate. Especially with a doc who can't put his ego aside to help a baby! Good Luck - Amanda

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