Posted By Posting
Jan 24, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
Matthew getting worse. Prilosec seems no longer working!
He has been throwing up on pureed food (not only textured food as I thought) and cried much during the day. I don't know where to go except this forum. Now I am sure that it's not teething related. He ate the same food, which he used to be able to eat about 3 weeks ago without any problem, and about half way through the feeding, he started to cry, put his hand into his mouth, chewed on it, and refused eating. Then he gagged/choked and threw up. It happened at lunch and dinner. He sucked his thumb a lot during napping/sleeping. He woke up screaming last night again. These symptoms are similar to what I saw when his reflux was out of control when we switched med in Aug 08. It has been like that for about 3 weeks but I was thinking it's teething related. Now that his teeth erupted 4 days ago but things are getting worse. I can't see the GI until next week. I gave him Mylanta but it didn't help much. How much and how often can I give him for pain relief? I will add Zantac to his bottle tonight to see if it helps. Do you have any suggestion? He outgrew Zantac and tried Prevacid without success before. It seemed to me that Prilosec is no longer working. What is next? The pedi said there's room to increase his Prilosec dosage but I haven't checked with the GI yet and I read that 20mg/per day is max for children without further testing. At 1 year old, his reflux gets worse, not better. So far, it seems he doesn't have food allergy symptoms yet. Do you think we should push for more testings like scope, biopsy? Thanks a lot for reading and your feedback.
Jan 25, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds

Has he ever had any motility testing, like a gastric emptying scan to check for delayed gastric emptying(DGE)? It is an xray, where the child drinks barium and they see how long it takes to digest(it is different than an upper GI which only checks anatomy).I would push for a DGE scan first, then a scope. This is actually a common condition in kids with bad reflux. Since food digests slowly, it causes reflux by the food backing back up into the esophagus. It can be mild or severe.

The next step: Refractory reflux and DGE can be treated with prokinetic medications, prokinetics work by increasing the contractions of the gastrointestinal system causing faster emptying. Simply put, the less time the food spends in the stomach, the less chance it will have to reflux back up. These types of medicines are Godsends for many children. Reglan and Erythromycin are examples of some prokinetic medications. Reglan does sometimes cause side effects in some Have any of these medications been tried?

The prilosec probably can be increased more, heck Brent was on 60 mg Prevacid at only 9 months old.There is usually room to increase more if things arent going as well as expected.That is a very high dose(he had severe damage) He takes a Nexium dose that is higher than most adults now as well. What is your sons weight, prilosec can be weight adjusted.

Jan 25, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
He has not had DGE scan yet. He was on erythromycin while was on Zantac and it seemed to help for a couple weeks only so the GI said we could stop. He is currently ~20lbs which is 2 lbs heavier than 4 months ago when we first switched to Prilosec.
Jan 25, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I would definitely see the GI. They are more aggressive with tests and meds than the ped. I'm not sure what to tell you to ask for, but I'd make an appt.
Check with your
doctor first!