Posted By Posting
Jan 24, 2009
nolan's mom
Introducing My little Nolan
Good evening all, I am a new mommy and new to this web page. My son Nolan was born 11/29/08 and weighted in at 8 pounds 15 ounces. I struggled through the first month of sore nipples and getting use to breastfeeding. Then about a month ago everything went south. He would puke after every feeding and scream his head off. Nolan’s Doc diagnosed him with reflux and he is now on medication. However we are still having problems breastfeeding. I have been pumping every two hours or so and feeding him with a bottle because he seems to take that better (keeping him upright and all). I am exhausted and now he seems to be getting very unhappy with bottle. I have to admit that I believe I have over active let down which doesn’t help either. I am going to try a breast shield for his next feeding because I miss breastfeeding him and hate using the bottles. I just don’t know what else to do. I hate hearing him scream and I know he is in pain after every feeding. I would really welcome any information or support because I have begun to cry as much as he does :( Take care, Jen
Jan 24, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
good luck with the breast shields, i went through 5 long months of trying to get audrey to bf well, i learned about breast shields only recently and might give them a try. she is doing a bit better with it but she is getting teeth!

i had much of the same problem with emily that you are having with nolan, i tried this diet called the elimination diet, the main purpose is to eliminate all potential food allergens primary being milk and soy, from you diet. its supposed to make the baby feel better by not being exposed to hard to digest proteins. nothing worked for her breastfeeding wise, i resorted to bottle and hypoallergenic formula for her. while our story was not sucessful many other moms have had successes with breastfeeding a refluxer, you don't have to give up breastfeeding him good luck!
Jan 24, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Welcome.

What med is Nolan on? H2s should pretty much have an immediate effect while PPIs take a couple weeks to see a significant change. We use both Zantac and Prevacid. It's very important how you administer the meds too as incorrect timing can affect results.

I exclusively BF my 3 1/2 mo. I'm currently on an elimination diet and Isobel is SO much better. I too had overactive let down but seeing a lactation consultant really helped. She explained block feeding and suggested pumping just to the let down and then putting Isobel to the breast. She also helped me with some upright feeding positions. Don't go BFing alone- help is out there.

I'm sure you're keeping Nolan upright after meals, diaper changes before meals, elevating his crib mattress, etc. Have you talked with your doc about Mylanta to help a wee bit till the meds take effect?

Hang in there, Momma, BFing gets easier around 3 mos.

Sara

Jan 24, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Welcome. Sorry you are having a tough time with your little one. I had the same issues and I think I gave up too early and went to a bottle/hypoallergenic formula. I know there a so many moms on this board who stuck with breastfeeding and it worked for them.

If I could do it over again I would do the elimination diet and see a lactation consultant.

Hang in there. It will get better.

Jan 24, 2009
nolan's mom
Thank you everyone for the support. To answer Sara’s question Nolan is on Ranitidine three times a day. Our Doctor just told me to give it to him three times a day and no other specific instructions. What is the correct way to give him his med? I know about keeping Nolan upright and all. I was going to do a little shopping today to see if I could find a wedge for his bed to keep hin at an angle. I did start using a breast shield last night. So far we have had three successful feedings since midnight with minimal vomiting. I have tried other positions and Nolan seems to get very upset with me. We have another Doctor’s appointment this Wednesday. Are there other questions I should be asking him? Thank you again everyone, Jen
Jan 24, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
if you can't find a wedge you can use books or blocks to raise the crib legs, OR you can put a pillow under the mattress both will raise to a 45 degree angle. you can also roll up a towel legth wise to make a "U" to fit under the crib sheet to act as a bumper so his little butt won't slide down the brib. they also see Tucker Crib Sheets on this site that work really well for elevated beds i've heard, it's worth looking in to.

ranitidine (zantac) is pretty weight sensitive so if he gains weight the dose might not be as effective. if you max out on zantac you might want to consider switching to a PPI med, they are more stabilizing. The ranitidine is able to be added to bottles or taken during meals. i'm glad the feedings are going better. Audrey will only eat upright (propped on a makeshift "wedge" of pillows) and if i am lying on my side. she gets very upset and she will not eat in any other position, no cradle hold or football hold. she is a strict side laying nurser lol
Jan 24, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh sorry i meant 30 degree angle! *note to self* don't do math classes and answer posts in between! lol
Jan 24, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh yeah sorry i meant to answer the other question too! at your doctor's appointment it might be helpful for the doctor if you bring in evidence of your days. that meaning maybe you could take a 2 day or a week long diary of nolan's day. note in the journal when he sleeps, when hes fussy, how much he eats when he poops or wets, when he spits up or vomits- this will also help you time your meds easier too.

if you say he vomits often, sometimes the drs don't believe you (b/c they consider a lot of it "spit up"), be specific; is it forceful, is it painful, is it a lot of liquid in volume- sometimes a video helps too.

ask for a plan of action, set out a time line and work with the doc, if nolan is not feeling better by doing current regimen, get something changed that day at the dr's (like a med change for example) and if he's still not feeling better, say in a couple weeks, we will change something else or do testing.

ask about trying different meds or doing different tests to rule out that the vomiting is not a serious condition and that it is "just reflux". reflux is tricky in babies cause some weeks are always better then others. reflux is aggravated by trying new foods, teething, sicknesses.... the sky being blue.... lol so i learned you really have to roll with it you want to get your little boy at a baseline of happiness reflux is not cured overnight but you can make great progress with getting in a good routine. i hope you have a good dr's apointment.
Jan 24, 2009
isobel'smamma
Sara, Mom to Isobel 10/01/08 Dx Silent reflux @ 6 wks. Prevacid 22.5mg split in 2 doses. Pepcid .5ml twice a day. Diagnostically confirmed milk protein, egg and cat allergy. Suspected corn, pea and squash allergy. Trialed Alimentum and Elecare without success, currently on Isomil Advance RTF with moderate success. Barium Swallow and UGI 3/08 Pondering a ph probe and endoscopy.
Emibug, I agree that video is helpful - it can show the difference between a fussy baby and a babe in pain. Sometimes docs need proof that you're not a hyper mom. Barring video, a call to speak with doc while babe in question is screaming can also be effective.

For us, Zantac alone just wasn't doing the job and we knew that within three days. Once the Prevacid kicked in it was like heaven and now with no milk or soy protein....amazing. I have removed the wedge from under the changing table pad, that's how good we're getting!

The towel trick in the crib really does work, we just have her mattress angled with a pillow. A good snug swaddle seems to help my girl stay calm and stay asleep - I went to a fabric store and got a 45 in square stretchy fabric to do the DUDU wrap. Best $6 I've ever spent! I would also highly recommend getting a baby carrier. I love my sleepy wrap - it was the only was she'd sleep for the first 8 weeks or so.

Good luck at the doc. I hope you're able to find something that works for Nolan

Jan 24, 2009
ccmom
I too am new here and just had my 8 week old girl diagnosed with Reflux. I can't stress enough how valuable a video is. Our first doctor said she just had colic and I couldn't believe that what I was a witness to was just colic. I seeked out a second opinion and this time took a video of my baby trying to laydown to nap after a feeding and within seconds of seeing the video she diagnosed reflux and ordered an upper GI just to confirm. We are now on Prevacid because the Pharmacist said that Zantac was too "scary" to prescribe to an infant because of its weight sensitivity. I wish you all the luck and we go through this trying time togehter!!
Jan 25, 2009
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
Welcome! You will find tremendous support here as you navigate this reflux roller coaster. It's not easy, and we're all here to help.

For additional help with breastfeeding, be sure (if you haven't already) to go to the La Leche League forum -- there are several forums dedicated to dealing with over-active letdown, chronic conditions, sleeplessness, etc.

Hang in there. I was in your position when my son was Nolan's age -- in fact, that's when I found this site -- and thanks to this site, LLL, and a lot of supportive friends, I have been breastfeeding my little refluxer for 21 months as of tomorrow! It's a rough road sometimes, but there's lots of support out there!

Check with your
doctor first!