Posted By Posting
Jan 23, 2009
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Meggy Colonoscopy/Endoscopy
There wasn't much to see on the endoscopy. The word the doc. used for the colonoscopy on the other hand is fryable. She was bleeding easily. Her colon is swollen, red, and bleeding easily. We don't know much more right now.

I am not sure she handled this anesthesia well either.

Will write more later.

Jan 23, 2009
jessicalynn
mom to 4 kids with probable
Mitochondrial Disease
http://ourbeautifulchaoticlife
.blogspot.com/
Dealing with Fundo, J tube feedings,Severe Dysmotility,Aspiration,Asthma,
FTT,CVS,Dysautonomia,Resp.Distress
Connective Tissue Disorder,
GERD,EGID,
Visceral Hyperalgesia, and more
Many meds
Praying she recovers very quickly! Crohns, Inflammatory Bowel Diseases and Allergic Disorders can all cause the friable tissue.
Jan 23, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
We are thinking and praying for you guys. I hope this provides lots of answers and helps you get Meggy feeling better. Keep us updated when you can.
Jan 23, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I hope this will give you some much needed answers on how to help Meggy. Sorry she didn't do well with the anesthesia. Maybe it will be out of her system soon.
Jan 23, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
Praying that your little one recovers quickly. I also would like to thank you for mentioning Dr. Greenhawt to us. We had a wonderful initial visit. For the first time ever, I felt like a doctor listened to what we had to say and is going to make an attempt to try to help us figure out what is wrong. He did more for us in one visit than our current allergist did in four years. Thanks again and I hope Meggy feels better soon!
Jan 23, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i was hoping you would get some good answers and this wouldn't just be a test to notch on her chart. i'm sorry it had to be such a painful discovery, but at least it's going to lead somewhere good! *hugs* to you and meggy!
Jan 23, 2009
helen lai
Mom to Matthew, 01/16/08, GERD baby, has been on Zantac since 2 mos. Aidan, his twin brother, no GERD. Max-ed out on Zantac at 1ml-3 times/day, and switched to Prevacid 15mg split tab 08/20/08. Switched again to 20mg Prilosec 09/18/08 due to Prevacid's restlessness/headache side effects. Reflux was out of control again and had to switch to 10mg Nexium 02/11/09. Good result so far.
Meggy is in our thought and prayers for a quick recovery. Please update us soon when you can.
Jan 30, 2009
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Gail
I don't know if anyone told u yet, but we were told Dr. Greenhawt left the practice. We are so disappointed and wish we could find him. The only thing I find on Google says he is in Michigan.

I guess we will be on the search again for a local allergist or GI that can treat her. Let me know if you find someone u trust.

Thanks, Engi

Check with your
doctor first!