Posted By Posting
Jan 22, 2009
radrn26
testing next Thursday
We are going for testing lower GI with barium and biopsy of the bowel looking for hershbrung"s disease. We have done the upper GI so we are moving forward. It's day to day!
Jan 22, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I'm so glad that you are getting some more testing done. I hope they can give you some answers to what is going on.
Jan 22, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i was going to comment on your last post last night (babies awake...) about hirschprungs disease, from what i had been researching i was going to suggest it. the GI suspects my dd audrey might have it, short segment or ultra short segment.

if you need any info i have found tons of sites and stuff i would be happy to pass on. it makes the tests not seems as scary as they sound. i have found huge success rates with HD survivors. hopefully that will put your mind at ease. in the mean time check out this site: http://www.hirschsprungs.info/

I really hope you can get some good information at the tests on monday. Are they doing suction biopsy?
Jan 22, 2009
radrn26
thanks for the help
I really appreciate the help. Emibug I will look into those websites. I have been researching everything for weeks. It doesn't help being a nurse and knowing too much. Sometimes I think ignorance is bliss!
Check with your
doctor first!