|Jan 21, 2009|
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I hate reflux but love PAGER!Aidan has had a nasty stomach virus this week and it just reminded me how much I hate this disease. We had just weaned him from meds and he was doing great and now not only did we have to add Zofran back in for the god awful wretching (I swear they should make terrorists watch my baby writhe in pain while wretching and trying to make himself puke) we are back on the stupid Prevacid. I know it is just a temporary set back but it still makes me hate reflux! He was just eating so good too so I really think the Prevacid has been adversely effecting his appetite too. And now I can't get him to look at food or formula.
Anyways, sorry for the vent. On to the part about how I love PAGER! So I get home from the ER where we dealt with stupid docs with no compassion to find my newsletter sitting in there and everythind in it just made me feel better and that it was going to be alright. I loved Jenn's story about Ella and even though I have read Melany's letter many times it still made me cry because it is so honest and real. It made me remember that I need to remember that God is giving me these struggles as an opportunity to learn and bond with my child and I should remember how much I have to be thankful for. So for that I just wanted to say I am thankful for my PAGER buddies and I love this site! I think I am going to ask for PAGER donations for my birthday this year.
|Jan 21, 2009|
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
|I hate reflux too!!!! It is such nasty disease.|
This site is my therapy. Honestly don't know what i would do without it either.
So sorry your guys got the stomach virus. I sure hope it doesn't take long for them to get back on track again.
|Jan 22, 2009|
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
|I hate that he has to regress like that but we went through that too. We aren't sure why she had to go back on two meds instead of one low dose but we started that back up in September and are still tweaking it when she flares. I really hope he starts getting better soon. ||Check with your