Posted By Posting
Jan 21, 2009
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Just A Quick Update
Praise God. I know I came a while back about possibly seeing the end of DS's reflux. It seems we really did see the end of it. It went so quickly that I was caught off guard. But we are still med and thickener free. It's like a whole new baby when it comes to meal times. It seems so simple now. I told my husband that I keep wanting to go and do all the preps we used to have to do and I feel like I am forgetting something each time I make a bottle. Oh, don't get me wrong. I love getting to "forget" those things. It just became such a part of our lives. He still cannot tolerate milk or soy. And, my Mommy gut was proven right. No one would listen to me on this end that the tiny bit of soy in Neocate was too hard on his stomach. That's what was causing his funky poops. Our GI doctor wanted us to stay on Neocate until 15 months old. I kept telling everyone that the formula was bothering his stomach. I was poo-poo'd like no one's business. I just had that feeling I was right. So, I spoke to my husband about it (the only person that always listens to my Mommy gut because he's seen how often it's right) and he said "do what you need to do to help him." So, I tried a wean to almond or oat milk. I found soy free, dairy free, vegetable oil, every form of anything soy or dairy free oat and almond milk. We are totally weaned! He took to it so easily. He loves his new milk. The oat milk wasn't great, but the Almond milk is his friend. And, like my Mommy gut said, his poops are normalizing so fast. I knew it all this time but no one would believe me. I know our journey wasn't nearly as long or as hard as so many of you have had. I just want you to know how much you all helped us. You all have answered questions no one else knew the answer to. You are all, meaning you and your little ones, still in our prayers for healing and comfort. I pray each of your kiddos ends up comfortable and healthy. I also want to let you know to keep listening to that Mommy feeling you get. I have had mine be right too many times to discount it ever again. My kids lives are the better for it. (you should hear the Mommy gut story for my older son, the reason DH believes me anytime I say, "I just have this feeling")
Jan 21, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Yay! I'm so excited and happy for you :) And I do want to hear the mommy gut story for the older son.
Jan 21, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Yeah, isn't it so weird that the peds always think that the formula should not be a problem. We went so long with Katie being miserable as an infant until I finally demanded that this stuff is killing her what else can I give her. Finally, they recommend the Nutramagin.

I don't get why they don't think that certain formulas could be aggravating these little ones.

Jan 21, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
So happy you are through this.
Jan 22, 2009
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
We tried every formula out there (barring one I heard of on here that you had to mix with a lot of things). All of them have at least traces of soy, even Neocate and such. They all have them. And then no one could figure out why his stomach issues wouldn't leave. I was told, over and over, it was too small of an amount, broken down too much, yadda, yadda to cause his allergic reaction. Well, my 3 year old is very allergic to strawberries and even a tiny, tiny bite will end up with an epi pen and an ER visit. Couldn't he be the same way with soy? Seems he was. Seems Mommy gut was right on this one. Oh, and for Maggiemom, my other gut story is (I have many but this is one of my biggies): My 3 year old wasn't setting right with me. He speech regressed and a whole host of other issues came up. I was told every story in the book (we were going to have a baby so he's sensing it, all 3 year olds are individuals, maybe he's about to make a huge leap in his speech so he's regressed, etc). My Mommy gut was screaming, screaming, screaming. My husband sort of listened to me, but wasn't so sure. Finally I asked if we could just get an unbiased person to take a look at him. It was $20 to have a neurologist take a peek, what could we lose. He was all for that and off we went to one that has a reputation of being top notch. Visits, tests, questionaires, and $20 later we were told "your son has Autism". I wasn't shocked. I wasn't even surprised a tiny bit. I knew it, in my gut. That started a whole whirlwind of activity that has been so good for our son. But, now my husband says, "your Mommy gut is speaking to you? You have him checked out." TRUST YOUR MOMMY GUT!
Check with your
doctor first!