Posted By Posting
Jan 16, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
OT-Milk Allergy Issues
So I am back to having the milk debate yet again. We were suppose to trial milk again before we return to the GI in February. So we switched from Elecare to skim milk last week and the first few days he seemed to be just fine and actually preferred it to the Elecare. But after a few days he was so constipated he was miserable. He is so gassy and uncomfortable. He also had some weird rashes on both body and face and has pretty much had butt burn since we switched. Then the constipation burst and we had like 25 poops in one day all runny and mucousy. He is also sleeping like crap again. He has had allergy testing done both blood and skin and both came out negative so we always assumed his issues were reflux related or just an intolerance. He seems to be able to tolerate milk in things at times although he isn't really eating enough of anything to know for sure. Is there anyway to test for delayed onset food allergies? I just don't know if we just need to keep on pushing through because his body needs more time to adjust to the milk or to put him back on the Elecare. I am tired of preparing formula! Any thoughts?
Jan 16, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
Why skim instead of whole? Just wondering.

The symptoms he is having sound like an allergy to me but I am not a DR. Just another thought... are you using reg milk or have you tried the organic version? Can he do soy?

You might ask if he can be retested.... the younger the test is done the less reliable they are. He may test allergic now.
Jan 16, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
The GI said that skim would be easier to process then whole milk and he isn't really having any weight issues where he needs the extra fat. He has severe wheezing on soy but doesn't test positive for a soy allergy either. None of his reactions are ever immediate like within the hour so I don't know if re-testing would ever show anything because if it is an allergy it is definitely delayed onset. I just wish someone could tell me for sure so I could stop torturing my child and move on from all these stupid trials. I will definitely ask the ped about testing again at his 2 year well baby and at the GI in Feb. Thanks Jenn.
Jan 16, 2009
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
My little girl has severe GI reactions to milk/soy/egg, but allergy tests negative. There are no real reliable tests for "intolerances" or non IgE mediated allergies. :( The only positive side of this is that if they are non IgE mediated milk/soy protein "intolerances", (with no other condition like EE, etc.) there is a very high likelihood of outgrowing by age 5.
Jan 16, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I don't know what to tell ya except that IMHO I would not keep trying a food that is causing that kind of response. It sounds like a allergy to me but since they can be mediated in different ways I know sometimes the testing can be unreliable. Maybe someone who has "been there done that" will chime in. I do know that in children under two it they can test neg when it is really positive due to immune system maturity. HTH!!! Follow your gut, if you think he is allergic then it couldn't hurt to wait until you can retest. Have you tried any of the other options like rice milk?
Jan 16, 2009
molson1525
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
maiam & Jenn
maiam-What kind of symptoms does your daughter present with when given milk/soy/egg. Can you have EE without a positive allergy test? Thanks for your response it does help.

Jenn-I will probably stop the milk until we can more answers. Thanks for your thoughts on the matter too.

Jan 16, 2009
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
My dd had vomiting, bloody diarrhea, increased reflux, "colicky" screaming, etc. Lots of painful GI stuff.

When we challenged soy at age 3, she had painful reflux/vomiting after 1 oz of soymilk.

Yes, you can have EE without + allergy testing - EE is not allergies, it is a whole different disease, that can only be diagnosed via scope (EGD). Both of my kids were scoped for EE because they have multiple warning signs: Food allergy, eczema, asthma, reflux that is not easily controlled, etc. There is a ton of great info on EE (eosinophilic esophagitis) at APFED and kidswithfoodallergies.org. HTH!

Jan 16, 2009
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
Hey Mary! We are in the same boat. Aubrey does not seem to tolerate milk. She can tolerate baked into things in SMALL amounts, but that is it. She has recently developed red chin and cheeks (not sure if dry weather or related to the milk issue) and she is either constipated or diahrrea. I have personaly stopped trying and will wait a LONG time before even going to milk. She does fine on soy so we are ok there. I guess we are in the same boat. Do I keep giving it to her or stop. Due to the constipation and the diahrrea which gives her burnt butt I just really limit what she consumes. I know that is not much help but wanted to let you know we are dealing with the same thing over here. Sure is hard!!!
Check with your
doctor first!