Posted By Posting
Jan 16, 2009
baby quinn's mommy
Mom to a 3 year old baby girl with severe reflux: g-tube, nissen fundoplication. dx: RAD, failure to thrive, DGE, epilepsy, sleep apnea, paraesohphogeal hernia, high lactic acid there's more "unknown disease"... Hospitalized 12 times, PT graduate! ST graduate! OT graduate! Current Meds: singulair, zopeonex, pulmicort, reglan, Keppra, Trileptal, vitamin B6, Veramyst. Current weight: 34 lb. Current height: 39". g-tube dependent, oxygen 1-2LpM all day and night PIC: Ms. Quinn
Everybody is happy and "healthy" over here
I don't know how healthy you can say a child with a g-tube, epilepsy, oxygen therapy, 8 daily meds, enzyme deficiency and hypotonia is, but for her, she is doing GREAT!!! :) And has graduated from therapy! And she seems to be doing marvelous. she just got over another chest cold. All the requirements were additional oxygen, tissues and a nice cozy bed. And she is pretty much over that illness.

As for me, i just got off antibiotics for another throat infection. ICK! and started school this week. I'm taking a math class. medical terminology and the certification course for an Emergency Medical Technician. I am so excited about this course! i should start working in the summer time and during the course of this semester i will be doing field clinicals! YAY!!!! I hope everyone is ok. -Sarah

Jan 16, 2009
Mary & Nicholas 7-17-03 (non-refluxer)allergies, asthma on Singulair and Flovent & Aidan 1-28-07(my refluxer)Nissen Fundoplication on June 20, 2008, FTT, MSPI, DGE, ear tubes, allergies and severe GERD now currently taking just Prevacid and drinking Elecare Vanilla 1+.
I am so happy Quinn is doing well. She is so cute! Hang tough with the college courses. It will be over before you know it. My brother just became an EMT and he loves it so I hope your course is fun. I hope Quinn continues to defy and amaze the medical community.
Jan 16, 2009
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.

I think what you are doing is absolutely amazing. U seem like such a wonderful person and such a great mommy.

I hope things continue to look up. Thanks for always sharing the good news too. It does make a difference.

Jan 16, 2009
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I'm so happy you've gotten so far with your med school. My niece is starting now...I hope she has the determination you've had :) Hugs to you both!
Jan 16, 2009
Donnessa, mom to Halley born 3/10/07
Reflux (mostly) resolved at 14 months
and Addison born 8/17/09. Currently exclusively bf and on 7.5mg Prevacid
Can you please send me some of your stamina and stick-to-it-ness? You really amaze me. I'm so glad that Q is holding her own and that things seem to be going so well for you.
Jan 16, 2009
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
yay! good luck in school i hope you have fun in clinicals!
Jan 18, 2009
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
Yay for Quinn! So happy that she is doing well. You deserve it!!!

Good luck with your course. Sounds exciting.

Check with your
doctor first!