Posted By Posting
Jan 14, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
At least I know...
Jazz GI wanted us to start Bio-K probiotics despite the fact that they may contain traces of Milk. I had previously been giving her milk/soy free probiotics, with no luck. Bio K has helped her a little bit, her diarrhea is not nearly as bad as it has been, except.............We were NOT feeding her any protein, fat or sugar foods.

So yesterday we gave her a bit of chicken, hoping the Bio-K would help., but NO LUCK! Jazzy was whinny, couldn't sleep, full of gaz and had some loose stools.

At least now I know that she needs an anti inflammatory for her colitis to stop the diarrhea with those 3 groups of foods that are difficult to digest.

I hope now that her Gi will take all of this info and act accordingly. I am not leaving her office without a prescription for either prednisone, or another anti-inflammatory. I am done with all this diarrhea/colitis and pain!!!!!!!!!

I just have to get thru this delivery first...today I am having braxton hicks pains with lots of cramps!!! YUCK.

Jan 14, 2009
katiesmommy
Tracey, mom to Katie diagnosed with GERD at 3 week.
Brenda, I wanted to talk to you about your previous post about Jazzy being sensitive, I added you to friends today on FB. Can we discuss it there or email me at traceyg@surewest.net please? Thanks, tracey
Jan 15, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
it sucks when you have to do protocol before you get them to realize that things just are not what they would want them to be... i was truley hoping that the probiotics would work for jazzy- write more later but it's 2am and both girls are awake...
Jan 15, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I hope he finally gives you the meds. Poor jazz I hope she can feel better soon.
Jan 15, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
Pook kid. Has anyone mentioned giving her digestive enzymes to help break down her food?
Jan 15, 2009
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I have often thought of the digestive enzymes too. We asked Meggy's doc for some and they said we have no evidence she needs them. Then we asked them to test her digestive enzymes.

Amylase and lipase came back okay. If you google digestive enzymes, it will bring up a big list. I am thinking we need to check the rest of Meggy's. Hope you get the answers u need soon and some relief.

Hope little Jazzy gets relief too.

Jan 15, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Thanks ladies....I hadn't thought of digestive enzymes...will look into them though!
Check with your
doctor first!