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Jan 13, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Erythro failure
So erythro isn't his drug. Z has been puking more now than ever. He is also throwing up hours after a meal which at LEAST he wasn't doing on the reglan. soooooo...talked to the GI today. Before we go back to the reglan, he wants us to try a drug called cromolyn (gastrocrom)...in a liquid form. I guess it blocks the mast cells from producing whatever it is that they produce that makes Z puke...allergic reactions and such. I guess it's used to treat mastocytosis, but also asthma. Anyway, we'll give it a shot and see where this gets us...what's another week, eh? *sigh* Wish us luck. Anyone heard of this??
Jan 13, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I sure hope it gives him some relief.
Jan 13, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
We tried that for Jazzy EC, but it ended up burning the inside of her mouth. So you might want to chase the meds with a bit of water. I hope it helps you guys!!! Good luck!!
Jan 13, 2009
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
Thanks...I usually mix all his meds with water or 7up so he doens't gag on them...I'm assuming this didnt' work for you guys> Any side effects? Any changes?
Jan 13, 2009
engin117
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My previous drivers license was also stolen. The new one has extra security features on it.
Our pedi. allergist said that if Meggy is put on Pulmicort, they will be giving her splenda to help her swallow it. The mast cell stabilizers are used in treatment of EE too. Hope he feels better soon.
Jan 13, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
No changes for us unfortunately, we didn't notice any side effecs except the burning in the mouth, which I immediately discontinued use...I hope you have better luck, it's suppose to be good.
Check with your
doctor first!