Posted By Posting
Jan 07, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Jessica and any other moms dealing with food aversion & allergies
Okay, so A has pretty much gotten over her food aversion and will eat anything. Even when I don't want her to. She is so allergic that we are having to limit what she is taking in and it is really hard when you have seen your child not want to eat and prayed for the day that she did. Now that it is here it is hard because she can't really eat anything. So far we have found carrots are okay for her. We have tried peas, potatoes and green beans with no success. She has a reaction either from the allergy side or reflux side.

So, now to my question. How do you get them to chew? She won't chew anything. She will swallow everything whole. She will fight to get it down whole. I can't understand how that can be comfortable and no wonder she is so bloated lately. If it goes in whole it comes out just the same. So, is this something that feeding therapy can help with. I have tried and tried and nothing. She still swallows it whole. I need advice on this. Also, she goes to daycare, I wish she didn't have to and if we could afford it I would quit and stay at home but that isn't an option right now. The other kids all eat cereal, or wo-wo is her word for it. They just walk aroudn with it in their cups. So of course she wants it. She is allergic to so many things. Do any of you have suggestions for a snack for a highly allergic child? I am at my whits end with this food issue!

Jan 07, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
i've been wondering how your doing!!! I'll write in a little while, as I am being called by the princess herself, but glad to see you on the boards and hope all is going well.
Jan 07, 2009
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
AH, chewing. that is such a struggle for food aversion kids.

With Jedd we did lots and lots of toys. Oral motor ones that is. We did them at every single feed even after he was eating purees pretty well. Purees really don't take alot of effort to swallow. Try swallowing some, like maybe some, applesauce. Really it's just like swallowing liquid. It takes little to no tongue movement to get it down.

It she is swallowing everything whole, she probably has weak muscle control in her mouth and in her jaw muscles too. Jedd has weak jaw muscles.

You may wnat to back track to purees and then when you advance back into textures start with something that you can make thicker. Like, mashed potatoes. You can make them thin and the over time, make them thicker.

With Jedd we had him sit down at least 2 x's per day with something solids but mushy to try and eat. IT didn't matter if he ate any of it at all. He just needed to roll it around in his mouth. It didn't even matter if he spit it out. After about 20 mins that would be taken away and his "real" meal of a puree would be given to him along with his fortified milk.

Over time, the solids started to go down the hatch. So we have been able to gradually take away some puree meals and go to meltable solids for some mealtimes. Now mind you, this took well over a year for us to do. Soo, it's not as easy as it sounds.

The first step was those toys though. Jedd really really liked them alot. Ark Therapeutics is a great online source for toys. Early Intervention bought alot for us. Does she get seen by early intervention?? I'd have an eval done and see if she will qualify for OT for feeding skills.

As far as allergies and what to eat...do you have a whole foods health food store near you??? I know someone in my area whose son has pretty awful allergies and she LOVES the store near us. She finds LOTS of snack things she never thought she'd be able to give him at that type of store. She was excited!!! Now, mind you, they cost bucks, but it's worth it.

For us, NO daycare would take Jedd with his 1 to 1 feeding needs. So I have to work at night. Which right now it non exsistant,....don't get me started. I work in a banquet room and there is NO business right now, so NONE of us are working...so no income....:-(

As far as foods at daycare, if she is allergic to what is being provided I pretty sure they should be offering a food that she CAN have. We had to at the one I worked at, within reason of course. Depending on HOW allergic she is, they shouldn't even be offering certain foods in the same room as her. KWIM she could get ill.

I hope this helps some. :0)

Jan 07, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Thanks for the insight. The doc has said before that she will probably need an eval but we haven't persued it because we really didn't think she would qualify but you have given me insight as to what they would suggest and what she might need. I actually told my husband that I was going to have to take a solo trip to the Whole Foods in Tulsa. Which is about 45 minutes from us. Read lots and lots of labels I'm sure. I can't do it with the girls. So I think he might watch them this weekend so I can do that. He and I are both having a hard time with this.

As far as daycare goes, she isn't in a center it is in home and a friend of mine watches her. So, she feeds her what I give her. That way she doesn't have to worry about it being contaminated or something she can't have. I feed her all organic foods and puree them usually. I have been dicing them but you know what happens there. My sitter says that she will chew some if she kind of pushes her cheeks together and tells her to chew. Of course, I tried that technique and she screams at me and spits the food out. She is much better behaved for others. I'm sure you guys kwim.

The thing that cracks me up is that she will chew on the end of straws, even those jelly type ones and she actually chewed the end off of those. weird!

Jan 07, 2009
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
We were told sunbutter is low allergy-however not the case with Meggy. We found ours at Kroger for $5 in the same size and shape container as peanut butter.

I will have to think more on it and write more later.

Jan 07, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Well Jessica's post is so informative. I can't add anything else, but we used oral motor toys to help us along. Finally after about 4 months she started chewing and that was it. We also backtracked to purees and slowly moved to textures etc... and just took it slowly. She has only been able to eat cheerios (organic O's) about a month ago (at 22 months). Good Luck!!
Check with your
doctor first!