Posted By Posting
Jan 04, 2009
colleen's mom
New, have some general questions
My daughter is 7 years old. We've been struggling since she was a newborn with asthma, ear infections, congestion, upper respiratory infections, pneumonia. Three sets of tubes later, the ear infections are over. She also had her adnoids removed. The asthma is relatively controlled (daily Pulmicourt, Albuterol as needed). Allergy tests (skin tests) done 2 years ago were all negative (but, I was warned they may not be accurate since she was still young). Winters are always tough-- she's prone to upper respiratory infections, constant nose congestion (daily Nasonex for this). Last winter pneumonia 3 times, this winter so far so good. Nights are always the toughest. Summers are generally good. For the past several years she has also been treated for reflux-- daily Prevacid. I always wondered whether she actually had reflux, but now I know she does since she's able to describe it. She complains that her "spit is spicy." She's also woken up feeling like her throat is "tight" (wheezy, almost croupy cough...but her lungs aren't wheezy-- it's her throat). As soon as she lies down to go to sleep she coughs. It's difficult to sort out whether this is asthma or something else-- but, I'm feeling as if the asthma is well controlled and maybe I should be taking a closer look at the reflux. We've never had any reflux tests done. I have always felt like the upper respiratory infection got better when she was on an antibiotic for an ear infection which never made sense to me...but, maybe it was helping inflammation elsewhere? Also, Orapred, the oral steriod, which is sometimes needed for her asthma often helps the "tightness" in her throat too. I know that's long-winded...but, my questions are: 1) Has anyone else experienced similar symptoms? I searched the blog and didn't see any mention of the throat tightness symptom my daughter complains about. Does this sound familiar to anyone? 2) Based upon your experience what types of testing would you suggest I discuss with our doctors?
Jan 04, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i do not have GERD but when i was pregnant with emily i had miserable daily and nightly heartburn. when i first got it, i had no idea it was heartburn. i remember waking up one night from a dead sleep with horrible burning pain in my chest and my throat thinking i was having a heart attack and it made everything so tight i could barley breath. so i think maybe it is a very clear possibility that what she experienced is a symptom of reflux.

I would ask for a referral to a GI and see about a endoscopy and possible bhrocoscopy (sp?) endoscopy will check for damage of reflux. reflux can cause aspiration causing pneumonia. my emily had a case of reflux induced aspiration pneumonia. i would definitely discuss these symptoms with a GI based upon the fact she is currently on prevacid as well. good luck and welcome!
Jan 05, 2009
maiam
maia m - GERD. Nissen Fundoplication w/hiatal hernia repair.
Mom to
Son (10) GERD(aspiration pneumonias, apnea, tracheomalacia), Food allergy, Asthma
Daughter (6) GERD, Heart Murmur, Food Allergy, Asthma, Mold allergy
Yes - my son and I both have respiratory symptoms from GERD. GERD can trigger asthma, and vice versa. I would see a GI or Ped GI and talk about further testing, whether it be a pH probe, a scope, etc. I was having severe asthma like symptoms that have nearly disappeared since my fundo surgery. My son has asthma that is triggered by GERD. Since going on high PPI doses, he has not had pneumonia, ear infection, sinus infections, etc...
Jan 05, 2009
mom2adriane&morgan
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
I will echo the pp. I too have had respiratory and sinus issues my whole life, eight sets of tubes. Basically exactly what you are describing is going on with your dd. I was finally dx with GERD when I was in college. To help her at night I would elevate the head of her bed. This can be as easy as putting a couple of pillows under the sheet or between the matress and box springs. I think that will help but I also think she should probably have a scope done.

when did she start on the prevacid? You say she seems to be doing better this year with the respiratory issues. I am just wondering if that is because of the prevacid. Although if she is still having discomfort and pain then she definitely need to see a GI. Welcome and I hope some of this has helped. -Amanda

Jan 17, 2009
colleen's mom
Thank you for all of the comments. They have been very helpful. She has been on Prevacid for a couple of years, but this year we increased the dose from 15 to 30 mg. We increased it because my daughter is now able to explain better to us the "spicy spit" feeling she gets. We will definitely move ahead with a GI visit.
Check with your
doctor first!