Posted By Posting
Jan 02, 2009
ahousat
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
Tired, Sad, Mad, Miss Daddy terribly
Holidays are a tuff time of year. I thought I got through ok, then reality came and slapped me back 'in check', it sucks. Finding myself really irritable with my children. My 28 month breastfed son continues to suffer. Nexium 20mg in the am, helps for sure, but nights are tuff still. We tried rhinadintine at night which seemed to make things worse? I think that after trying everything, nexium is the only one that works for us. I just want a full nights sleep. I want my baby to be able to be able to rest properly and not wake due to suffering. Testing, we've done it all.. but the PH Probe test which I still want done. Rast, came back all clear, which is frustrating because why the hell are some nights so much harder than others? Back to tracking his foods. My oldest son was really struggling to keep his feet on the ground, which is tuff for any parent.. but unless you walked a mile in our moccassins .. it is hard to really know. AND REFLUX just fuckin' puts the cherry on it all. I want it to end. I want my life back. I want my husband back. I want my baby to be better so I can be there for my older son who so desperately needs me, but with reflux you can only give so much. Sigh. Ok so now 28 months, what does your toddler do when suffer and what do you do to comfort them, or what helps them? I couldn't imagine not breastfeeding, what a nitemare that would be. I think of leaving him for a night, but I cant' put that on someone else.. and how would he be ok without booby 4-5 times a night? god that would be HARD. Anyway just wanted to drop in and vent. Still tired..and sad.
Jan 02, 2009
ahousat
Lost my 33 yr old most physical fit husband 1 year ago, I miss him and his help! Feels so shitty and unfair. My baby getting better is the only thing that would bring my sanity back.
chart
I suck at charts, and am looking for a very easy one to use for him, foods. reflux,ect. Does anyone have one I could use that might help clearly see the picture.. I must be missing..
Jan 02, 2009
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I'm so sorry. I wish you didn't have to handle all this alone. I can't imagine how hard it is for you.

As far as a chart, do you have a spreadsheet program like windows? You could just make your own so it would be as easy to follow as you want it to be.

Now as far as what he eats...I don't want to offend you at all but it could be something you're eating. After I quit breastfeeding Mags did much better. I think no matter how hard I tried, she still got stuff that aggravated her. I know how comforting bfeeding is for mommy and baby but maybe you could try cutting back a few feedings to see how he does. Like I said, I know that's easy for me to say and harder for you to do :) It's just a thought. Also, waking all those times at night to bfeed may be making the reflux worse. He feels he needs the milk to soothe his throat and it's actually making it more painful for him to lie down and sleep. What's your dr's stance? Is he willing to try another med or a stronger dose? and I'm not sure that a pH probe will help if you've done everything else. It's very helpful early on, but if you've done a lot of other stuff, it probably won't tell you anything new.

I send you the biggest hugs and prayers ever!

Jan 02, 2009
slimfast13
This is our dd, Alessandra. Dx with GER 10/07. Ran the gamut with meds and now done with them (crossed fingers). Using magnesium, probiotics and prebiotic supplements. With the exception of teething and general sassy attitude, all is well now. They really CAN grow out of it!
The holidays can be so hard sometimes....Prayers are there for you and your boys.

I hate to say it, but I agree with Melissa (maggiemom) about maybe weaning off the breast, especially at night. Your boy is old enough to be able to sleep through without extra intake, so I think it's habit now more than anything (JMHO). This is meant with no offense - just a thought. Also, the ranitadine (zantac) can cause more irritability - it's a possible side effect, so maybe ask the doc to try something like pepcid or maalox/mylanta instead.

My lo is only 15 months, but when she starts fussing, I do mainly distractions since the reflux is under control. I can't say my baby's really suffering now though, so I don't really know what to do about that. I believe you two draw comfort from each other, which is great, but can be very stressful when you're so attached and can't leave to get away and be just "you" and not "mom."

Foods - i think Josyln's mom made a site called www.medibaby.com or something like that for tracking foods and meds, but I haven't needed it so I haven't checked it out. There are a number of those kinds of sites out there. I just used basically the same kind of chart they give you in the hosp to chart diapers and feedings - just modified it to add meds and reactions. HTH

Jan 02, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
HUGS..............Not much more to add and I agree with the above posts. I really hope your poor little guy feels better. Weaning helped mine a little bit......Kinda sad i know. Have you tried Maalox or Mylanta at all? That can really help sometimes?
Jan 02, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
Thinking of you...Life with reflux was really hard for my six year old when he was that age. We finally got some rest after we figured out a way for him to sleep where he did not slump down to the bottom of his raised up mattress. We could not afford a special bed so he slept sideways on an armchair with big fat arms and I slept beside the chair to be there if he fell over. It was the only way we got any rest. Hope you are able to figure out what will work with you little one soon.
Jan 02, 2009
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Just wanted to offer hugs. I don't think any words I can say will take away your pain....:-( ((((HUGS))))
Jan 03, 2009
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I am so sorry for your pain. I can't imagine how difficult it is for you.

Katie's nights seemed to be worse for her too so we split her 45mg dose of prevacid. 15mg in am and 30mg half hour before dinner. It really made a difference. You may want to talk to you your doctor about that.

Also, Mylanta is the best for her. I still give it to her at night and sometimes during the day. It is very soothing for her.

If his little tummy is super sensitive to different foods you may want to wean him so that you can keep track of exactly what he is eating ( hard to think of I know). Prevacid.com has a great chart to keep track of foods eaten and symptoms. You could make a great journal with it.

Prayers for you and your family.

Jan 03, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Sorry to hear you all are still having such a hard time with the reflux. Just a thought - has he been tested for delayed-onset food allergies? We thought we were "just" dealing with peanut, dairy, & egg, until we did the patch testing (and, of course, this testing only covered about 15 extra foods). Then we found he was also positive to rice, potatoes, peaches, & corn. These foods were negative on the RAST and scratch testing. So, it may still be his diet. Can you get him on an elemental formula so you will know if he is reacting to foods through your breastmilk? If you see a hugh improvement after a few days, you can suspect foods as an aggrevating factor. Ellen
Jan 06, 2009
bib3mama
I have 3 boys, youngest has gerd, 18 months of no sleep. Prevacid 2x/7.5 mg thinking of switching to prilosec.
nursing still
i couldn't imagine not breastfeeding either. Congrats on bfeeding for 28 mo. My guys didn't "sleep through the night" until they weaned. I softly encouraged the weaning at around 3 yrs. David, my GER child is 21 mo. and still nurses. He wakes 4-5 times at night- and thats a good night. The bad ger nights are every hour. Do you have a la leche league in your area? They can be great support- for everything. I'm so sorry about your husband. I hate the reflux too. Its such a head game when you are nursing (is my milk hurting him?) At an instinctive level I think its what has kept him doing alright, but I won't know for sure. Parenting is one big looong experiment and every child is different, etc...Hang in there.
Check with your
doctor first!