Posted By Posting
Jan 01, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
allergy testing
Need advice.....I have a six year old with GERD, constipation, chronic hives (in Feb. will have had hives for 3 years), angioedema, migraines, asthma and possibly arthritis. The meds he takes daily are prevacid, periactin, singulair, pulmocort, clariten and nasonex. He uses an albuterol inhaler and takes miralax as needed. He is severely allergic to ibuprofen. Allergist has suggested that he avoid nuts of any kind. The doctors are unsure about what causes the chronic hives and angioedema. The RAST test came back non-conclusive. The allergist says he can't do skin testing because there are too many hives when he is off of the antihistamines for three days. We have an appt with allergist next week anybody know of any specific tests that I could ask about that might give us some answers? Thanks for any and all suggestions.
Jan 01, 2009
nicholasmom
Renee, mother to Nicholas, born 4/18/08 with silent reflux, moderate laryngomalacia, Sandifer's Syndrome& suspected MSPI. On Neocate, Simply Thick and Prevacid. Also mother to Nathan, born 12/06/06, who had mild reflux the first few months.
Goodness, I have no help for you but am curious as to what you find out. My 8 month old has severe all over body eczema and is also on an antihistimine 24/7. Skin and blood testing all came back with only the mildest reaction with egg and milk on blood test and negative on skin testing which is suppossedly more sensative. Even with the antihistimine, we have to use topical hydrocortisone and sometimes steroid and oil and lube him up like a butterball 2-3 times a day. They have no idea why his body is reacting the way it is. Hopefully, Sebastian's mom will have some advice for specific tests that may help your lo. Good luck.
Jan 02, 2009
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi Gail, Hi there. I haven't been on this site in a while, and one of the moms alerted me to your post. I am so sorry your LO is having such issues. I know how horrible it is to play the guessing game. OUr kids have a lot in common - Sebastian, too, gets chronic, hives, although we think we have narrowed them down to the dog (he is allergic to the dog, but we have a pretty strict cleaning method to keep him safe. With all of his allergy issues, the allergist said giving Louise the boot wouldn't do anything, really, for him.) We, too, are on Singulair, Prevacid, and Miralax and have constipation.

I will definitely try to get on here later to help you out a little - I need to go get my son - but I am wondering if she is eating something that is giving her the hives. Sebastian tests negative for milk, for example, every time, and his milk allergy is so severe that he had diarrhea, vomiting, and ridiculous eczema for 10 days when he had the tiny, tiny amount of cream in Omnicef four four days when he had a sinus infection. The problem is that there are several typesof allergies that do NOT show up on RAST and skin tests because they are not IgE mediated. I will definitely write you soon. I think I can at least sort of help.

Jan 02, 2009
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
I have no idea why I just kept writing"she." I'm sorry!
Jan 02, 2009
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Oh - I forgot to add that kids need to be off antihistimines before RAST testing, too, or the testing will not be accurate.
Jan 02, 2009
gail
Gail - mom to a six year old with reflux and an infant with reflux
Thanks...Renee! I look forward to hearing back from you. My son has had the same allergist for three years. The regular dr, gi dr, neurologist and rheumatologist all seem to think our allergist is the best. I like the allergist too but I am not sure that he is doing everything possible to help us figure out what is wrong He says that more than 70% of the time the cause of urticaria hives is never found. It just seems that with with all of the problems (gerd, migraines, constipation, hives and asthma) that they might be connected some how. Lately, it seems that my little guy is getting worse instead of better.
Jan 02, 2009
mdbarbagallo
Melissa - Mommy to Sebastian, born 9/28/07 @ 7 lbs 7 oz and 20.75 in. At docs at 12 months: 27 pounds and 32 in! Good grief! GERD - currently on Prevacid suspension (liquid equivalent of 45 mg a day). Allergic to dairy, soy, eggs, wheat, all treenuts, peanuts, fish, shellfish, peas, sesame, bananas, barley, coconut, dust, dust mite, dog, cat, latex. Seasonal allergies. Oral Allergy Syndrome (OAS). Neocate only - no solids - until further notice (drinks and loves water, too). Loves his doggie, our rescued Treeing Walker Coonhound, Louise, even though he is allergic to her. Louise will make your doctor a homemade pie if you would like her to. PHOTO: We couldn't do a cake on Sebastian's birthday, but that didn't stop him from tossing around the contents of a big bowl of popcorn! He now tries to eat it when we play with popcorn, so no more of that game.... :(
Hi Gail. Sorry to cut that short earlier. As for tests, you could request patch testing, but not all doctors will do it for kids. But since your son is 6, it might be a go. Patch testing tests for non IgE-mediated allergies, which aren't typical autoimmune responses and won't show up on RAST or skin testing. Blueleopard (Ellen) has had this testing done on her child, so she might have some info for you. The testing involves taping tiny cups of a pure food to the patient's back and leaving it for a few days. If there is a non IgE allergy to the test food, there will be a skin reaction when the cups are removed.

I would definitely request RAST testing again, but it won't be accurate if you can't skip the antihistimine for a week. That is so hard. I'm so sorry for and your son are dealing with that. Is it possible to use the Benadryl cream in place of the oral antihistimine just for the days prior to testing? My son's hives don't cover nearly a smuch of his body as your son's, so we are able to go that route. Sebastian has a paradoxical reaction to antihistimines, so we can't even go that route except in emergency cases.

It is quite possible that your son is severely allergic to an environmental trigger, but this is really nagging at me. I really think your son's problems could be related to food. Avoiding nuts is definitely a good idea (watch foods that are made on shared equipment, too). But you might also want to consider taking your son off the top 8 to see if there is any improvement? I really don't mean ot overstep my boundaries here, but I think that after three years of hives, it is time for your allergist to step it up. That is such a long time for your son to endure that, and for your doctor to say that 70 percent of these hives' origin go undiagnosed is unacceptable! He needs to explore new avenues.

After months and months of misdiagnosis, we finally found Dr. Robert Wood, the leading pediatric allergist in the world. He is based at Hopkins in Baltimore. He absolutely believes that my son's GERD is 90% food related and 10% reflux related. We got to the point last summer that my son couldn't tolerate ANYTHING, so Dr. Wood would took him off everything but Neocate formula. We are still on Neocate only, but I can tell you that my son is 1,000,000 times better than he was last summer. We have a long way to go, but he is on the road to recovery. With your son - if the problem is food related - it could be anything at all that he is eating, and the best way to rule things out definitively. Taking out milk, soy, eggs, etc could at least rule something major and common out.

As for a link between your son's issues, I just read about a study yesterday (in Living Without magazine) that found a link between food allergies diagnosed in the very young (infants) and childhood asthma.

If you'd like to talk more, please don't hesitate to contact me at mdbarbagallo@hotmail.com. I hope this helped you a bit.

Hugs,

Melissa

Jan 03, 2009
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi. Just wanted to add that my son had patch testing done at a major Children's Hospital, but this was done to look for delayed-onset food allergies contributing to his eosinophilic esophagitis. I have a book that I'm rereading now titled "Is This Your Child?" by Doris Rapp, MD. It's a great book. It is all about unrecognized allergies. I don't have time to look up all the listings for hives (I'm packing for Mexico : ), but one section on chronic urticaria says the cause can be elusive, but look for milk, nuts, fabric softener, laundry soap, contact with animals. Of course, they can also be caused by pollen, molds, dust, sunlight, etc. So, I think you have your work cut out for you. Did they start after getting a new pet, moving, switching to a new type of soap, etc.? Does he get severe flare-ups of the hives? If so, what was he touching or eating in the few hours prior? I hope you can get some answers; I know how frustrating allergies are. Seems every body system on my son is affecting in some way. Ellen
Check with your
doctor first!