Posted By Posting
Jan 01, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Kat
Hi Kat,

Is Emily is feeling better? I hope so...

I have a ? for you. Jazz reacted to neocate with diarrhea, pain, etc....I posted this before. As I was trying to build her back up, someone gave her a piece of watermelon and then my niece gave her a cherry lollypop!!! Both in the same day. The next day she started the whole cycle again, and back down we went.

I'm wondering if sugar is the culprit here, so: Can Emily tolerate watermelon, or is it too sugary? Also, what is the min. number of grams of sugar LO's with CSIDS can have in one meal? I'm wondering if her non dairy product is too sugary also. And Jazz sms ok with carbs, but do you limit Emily's carb intake?

Thanks, I know you have your hands full.....

Brenda

Jan 02, 2009
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh man we had those days! from what i have researched sugar can be the culprit or contributor to problems in ANY intestinal disorder/ disease. This does not mean CSID as a primary diagnosis (CSID is a hereditary true forever deficiency in enzyme) but what it does mean that until the "real" problem is found, sugar (sucrose) that can not be digested can cause pain, bloating cramps and watery diarehea. I think this is the case for emily, that she does not have true CSID but sugar DOSE contribute to her pain.

that being said i have never given watermelon to Emily, i myself do not like it and it always causes me to have horrible stomach aches and i have no GI problems or food allergies whatsoever. But i think i remember that Sarah gave it to Quinn and i remember her telling me she did fine with it.

the other thing that is so hard about this is almost every kid is different with the amount of sugar per meal load and daily load so there is not true standard of number of grams. the closest i have found in a "guideline" is stick to foods that have less them 2g of sugar per 100g of food. and this is soo frustrating b/c you kinda need a scale. I did not use a scale. I will tell you... some days emily can be fine on 2g of sugar the whole day and others it is 7g per meal.

sarah did say a dr told her that you would know if sugar is the main culprit if you have immediate watery diarehea after you eat too much. emily does get that if we overload her but she does not have immediate watery diarehea all the time, she has bulky very loose slightly watery stools a few times a day. She does have some enzyme to digest the sugar, although not much.

I do limit emily's carb intake to 1 piece of regular sf white bread or small amount of pasta ect. i notice when i do she is MUCH happier. I also limit her SF food intake as well cause SF stuff can cause paradoxical diarehea. I can talk to you more about this on Fbook or email if you want to know how i did it with emily.

you can find a little more info at www.csidinfo.com and www. nutritiondata.com
Jan 02, 2009
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Thanks!!
Check with your
doctor first!