Posted By Posting
Dec 30, 2008
3blues21pink
DS #1 (7/05) - Just ReDX'd Refluxer! Prevacid Solutab starting 4/8/09. Lots of food and environmental allergies. Autism, Sensory Processing Disorder, Speech Delays, Developmental Delays, Severe Muscle Tone Weakness.
DS #2 (1/08) ReDX'd refluxer. Milk and soy allergies with Soy Lecithin allergies. Oat milk drinker, Rice protein powder, DHA, and vitamins added for bulk and needed nutrition. Weak muscle tone, slightly developmentally delayed, SPD confirmed.
Reflux Getting Better?
OK, my child must have the oddest little body. I am sure you all remember a few weeks ago when we were literally hours from placing an NG tube because he would NOT eat. He was refluxing the few ounces he did manage to eat each day. (we were down to 10oz/day total for him and he refluxed at least half of that) The night before our appointment to place the NG tube he looked at what we were eating and begged for it. We let him have it. (up until then, he refused all solids, period. No matter what we did to them, he wouldn't touch them. He's 11 months old.) That was it. He has been increasing his solids ever since. He eats 3 meals a day of solids and formula in between. It was like the second he put solids in his mouth, he remembered he was supposed to eat a bottle too. Something told me we were seeing a change in him. (I have learned, having two sons with special needs, to listen closely to my Mother's voice.) I started to wean his Prevacid. I told no one, not even DH, as I wanted to see what people noticed, if anything. He had 2 spit ups and that was it. This has been since Thanksgiving that he's been free of it. So, 10 days ago, I decided to wean his thickener and just see what would happen. I figured I could immediately thicken again if it proved a bad idea. We have him down to a level 3 nipple (had to have a level 4 before since his formula was so thick), with one scoop of Thickit/8oz. (had honey thickeness Simply Thick before) How does a kid go from refluxing everything he eats, nearly needing an NG tube, to this in a matter of a month? I am not complaining, oh it's wonderful. He's still on Neocate, obviously, due to his MSPI. I am still not sure it's the perfect formula for him since it's not totally soy free, but will wait until our next GI appointment to discuss it with her.
Dec 30, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
I would just be super careful. You have eating going on now and to mess with meds could cause the NOT eating to come back. The eating could have started because he felt better and then if you take out the med you can slip back to non eating.

It can take a bit for the meds to actually completely leave the body. So you could be fine for a few weeks and then bam have a reflux flare...JMHO.....I don't mean to rain on your parade.

Also, why were you using the thickener???? If it was DR directed I really wouldn't pull him off until the DR lets you. If it is being sued for aspiration reasons I most certainly would not stop it. Again, JMHO

Now, the thickener could have been causing things to empty slower so that could be why you are seeing a decrease in vomiting.

Again, this is all JMHO. I'd just be REALLY nervous about moving things around if you just got him to eat well.

Dec 30, 2008
zack'smom
Zack born 09/28/07 @ 31 weeks. Dx silent reflux @ 6 mo. Now not so silent. Switched to Elecare @ 9 mo. On Prevacid 15mg 1x daily. Looking to stop the puke and gain some lbs.
Puke stopped about 24 months and he's learning to eat...very slowly.
Still on prevacid and periactin.
I don't want to rain on your parade either, but I'm going to, just a little. It's only been a month. My son goes through periods of eating solids...on vacation, he was eating avocado EVERY day...tons of it (by my standards)...then it stopped like he hit the brakes. If he started eating I wouldn't change a thing for a whuile! BUT, that being said, he's been off the prevacid for a month and I wouldn't bounce him back on it, either. I wish you all the luck in the world, but if anything happens, next time I would give it a good solid three months of healthy happy eating before I made any major changes. Good luck, I sincerely hope it all keeps up...I'm jealous! :)
Dec 30, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
It is tough to make changes without the doctor's knowledge because it makes it hard to analyze what working and God forbid if something goes south, what caused it.

I am happy that he is doing so well and hope that this is it for him.

I always treat this as a science experiment. I go slow and only change one variable at a time.

Best of luck!

Dec 31, 2008
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I would definitely discuss any med changes with a DR. We did all our weaning attempts and med changes under the DR's supervision and still ended up with a child now dealing with esophagitis. So, not to be a "debbie downer" just be careful. Kids at this age will not always tell you when they are feeling bad. Sometimes by the time they are exhibiting symptoms (as with my daughter) they have damage. I think some of these reflux kids have such a high threshold for pain that it takes a while for them to complain. At least I have found that to be true with mine.

That having been said, it is always possible that he has outgrown his reflux. One year old can be a magic age for some of these kids and they CAN have a complete turn around. I have talked to parents who have said that very thing.

I will be hoping that the latter is true in your case as well but highly recommend calling the GI just to let them in on what you are doing. That way they will be informed should he start to feel poorly again and they may have some good ideas for the best way to keep him off of meds.
Check with your
doctor first!