Posted By Posting
Dec 27, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
Sorry if I'm rambling, please help if you can...
Some answers would be sooo appreciated. Amalia is still not herself since the last illness- no fever for 5 days now. Her appetite is finally back (just today). I know she lost some weight over this last illness, and she has always been thin. I'm worried because at lunch she ate the amount she used to eat prior to being ill- and she started refluxing immediately afterwards. She could not fall asleep until about an hour after she ate because of the reflux. She is also preferring smooth textures vs. rough (e.g. rice) and swallows hard the tougher the texture. These symptoms were not present prior to the illness. Questions: 1. How long after they are ill can it take for them to get back to pre- illness status? 2. When should I start considering different med or further testing- how long should I wait? 3. She slept wonderfully last night- it seems that as long as her belly is empty she does fine. So it seems (to me) like it's not an acid thing but just the LES letting the food come up. If that's the case- could meds really help? 4. The texture thing /swallowing seems like maybe her throat is hurting...but at 3 months of age when she was choking like crazy endoscopy results were normal- no redness or signs of damage anywhere. I know this has a name- when the reflux is still irritating the throat although there is no damage- anyone know what it is?? 5. Along the same line of questioning- what is the name of the reflux book that I have seen advertising here? I want to get it- I thought I could avoid getting it, but I don't know if it's the Lord's will for this road to be long for us... Thank you if you have read this far. I'm calling the GI Monday and advancing her follow up appt. God Bless.
Dec 27, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
Mely, I wish I could help but you know I haven't dealt with these issues. Just wanted to send hugs!
Dec 27, 2008
kubicki5
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I am sorry she is still not feeling good. I know that it can really take a long time for them to get back to normal after a nasty virus. Good idea to get to the GI as soon as possible. Until then I would just keep up with the meds and use mylanta for her pain. Also, keep her on a very bland diet.
Dec 27, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Mely,

It is hard to tell how long it will take her to bounce back. It is a very individual thing and depends on how bad her illness was. When Meggy had her chicken pox vaccination, it took her a few months to bounce back in eating and the pain never got better. But, this is not the case for everyone. I think most of the kids on here did well with immunizations. I say this to say every one is different.

As for the meds, there are many success stories on here, but ours is not one of them. Meds always Made Meggy worse. I think the other moms could give you much more positive things in this department. U just have to find what works best for you and for her. It seems u r already doing that knowing that if she goes to bed with less in her tummy, that she does better.

As far as when to consider different Meds or procedures, I think about with Meggy is she having more good days than bad days or right the opposite. How is her quality of life?

Carafate and Levsin helped Meggy at some point in life but no longer work and I don't know on the Levsin if it is because it is a different company making it or not.

I am not sure if that is what is meant by silent reflux or not as far as when there is reflux without irritation.

What testing has Amalia had? They may need to do a swallow study to look at her swallowing Mechanisms and everything.

I wish all of you the best in Life and hope she will be well soon. I know it is tough when our little r hurting and we don't know the next step to take.

Dec 28, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
Hi Mely, Just wanted to ask how Amalia was eating before the virus. Did she choke on foods a lot? Can she handle normal textures/sizes of foods typically fed to babies her age? Do allergies/asthma run in your families at all? Is she usually good natured? Eric had a "normal" endoscope at 11 mths. of age. It wasn't until this past summer (he was 2 1/2) that his endoscope showed a lot of damage and 36 eos.). His condition isn't very common, but signs are: reflux that doesn't respond to therapy (Prevacid, etc.), difficulty swallowing, poor appetite, difficulty sleeping, failure to thrive, abdominal or chest pain, nausea and vomiting. Not trying to scare you in anyway - I just want to put the awareness out there; in case the reflux isn't getting better by one to two years of age. Hope she is on her way to getting back to normal. Take Care, Ellen
Dec 28, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
Thank you soooo much for your input everyone. Bluelopard- after doing a lot of thinking and really watching her eat her dinner yesterday, I remembered that Amalia has always cycled regarding what food she will and will not eat. There have been times where she ate chicken, rice and beans just fine and others where it took FOREVER to chew and swallow, accompanied by some choking. Yesterday, I tried to give her beans in sauce (spanish style) and she was not happy with the texture at all as soon as I put it in the mouth, and I noticed she was trying to swallow real quick- then she choked- and spit out a full bean. Then I look into her mouth and half of one molar is starting to push through (2 1/2 out- 1 1/2 more to go!!!) and she was trying to scratch with her finger and drooling some. LAst night she whimpered a couple of times at 2:00am- the teething whimper. So I'm thinking (I hope) that her gums are sensitive and she just does not want to chew- and this is why she is not wanting rougher textures. I had forgotten that teething has ALWAYS really affected what she will and will not eat. Teething for her has always led to more silent reflux (hiccuping- right after feeding, which she has been doing a lot more of since yesterday). So, after I saw what she did in dinner and cooked her a whole other meal =) I felt better. I'm hoping it's all teething related- It's just it's been a while since she has eaten like she used to ( 1 1/2 weeks ill..and now looks like the teething is not letting her..) If after she is done with the molars she still has feeding issues- and it seems to me that is related to chewing- I will ask for an ST eval. If it seems like it's reflux related- then more testing =(. I'm praying it's teething related. I'm still calling GI tomorrow to see her sooner. Thank you again everyone for your support and ideas. God Bless.
Dec 28, 2008
mely
Amalia 11/1/06, Silent reflux- Weaned off prevacid in the summer- back on again 15mg. Back on lactaid. Atalia- 6/17/08 DX with GERD and colic at 9 days of age. Appears to have mild MSPI. Upper GI. On Prevacid 22.5mg. Successful transition to whole milk! Eats everything!
Pic. Amalia and Atalia having fun at home.
Engin- she had swallow study, blood tests, and endoscopy all at 2-3 months of age. Her quality of life is tons better since the meds FINALLY kicked in at 4 months of age. Thinking and praying about your little one. God Bless.
Check with your
doctor first!