Posted By Posting
Dec 27, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Neocate caiused major colitis flare
can you believe it? i will be taking her into the ER on Monday if i don't see much of an improvement. It seemed to all start shortly after I started her on neocate (diarrhea, cramps, reflux, screaming, not eating/sleeping etc...). Now that I pulled her off of it, she's a LITTLe better, but I'm hoping that come Monday I'll see a marked improvement. I thought neocate was good for babies with Eos. disorders....... Has this happend to any of you?
Dec 27, 2008
emibug
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
oh no! :( i am so sorry... I hope you don't have to take her to the ER! to tell you the truth Emily did horrible on Neocate. I always attributed it to there being too much sugar in it. have you ever tried the Ross Carbohydrate free formula? or nutramigen? prayers and hugs :)
Dec 27, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Thanks Kat...we tried nutramigen, but she really wouldn't drink it...it is pretty gross! I hadn't thought about the Ross carb free stuff.... maybe I'll give that shot once she returns to normal...if we ever get there!!
Jan 02, 2009
jenrackley
PAGER Volunteer Services Coordinator
Nutritionist
Melina 7/24/02 now reflux free!!
TWINS:
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
This might sound like a stupid question but are you sure it was the Neocate? While I am sure it is possible to have a reaction to it it is also pretty rare. Of course, what else is new with these kids? ;) I am just hoping for your sake that it wasn't the Neocate because that limits your formulas options. Have you tried EleCare with her already? :( Sending prayers and hugs to you both!
Check with your
doctor first!