|Dec 22, 2008|
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
|Like so many, I am finding it increasingly difficult to find the time to post and update, but I do check in here frequently to read others' posts, even when I'm unable to reply. This place will always be like an old friend to me -- it helped me survive during a time when I really wasn't sure I would be able to.|
Lorenzo has been, for the most part, doing well. He is still relfuxing (silently, as always), although it seems like it might be slightly less frequently. He still breastfeeds like a newborn, but he is now having a few days here and there when he actually eats solids like a "normal" toddler. The sleep problems continue to haunt us, and he is still having a lot of apnea episodes. Still, however, it does not seem to effect his development, or, knock on wood, his heart.
He is talking up a storm, repeating everything he hears, learning how to sing (too cute for words!) and continues to have the focus of a scientist. We are still having trouble with biting and squeezing other people when he has not had enough good sleep (ie, every day), but it is getting easier to communicate with him about it, and I'm hopeful that he will eventually grow into other means of expressing his anger and frustration. I have noticed that he isn't able to pronounce sounds that are made at the back of the throat, and that, coupled with his tendency to choke and the continued sleep apnea have led me to believe that the apnea is a result of both the reflux AND a lack of muscle tone in his throat. It makes sense to me, too, that he wants to nurse all night, both to keep things moving in the right direction, and also to keep the muscles in his throat from completely relaxing. At least, that's what I'm telling myself to deal with looking at another year of no sleep :)
Happy holidays to all of you, and may we all see some relief for our little ones, and experience the joy of sleep in the coming year!