Posted By Posting
Dec 17, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Meggy update and question
R u ever nervous about entrusting your child in the care of the doctors or nurses for procedures? I think I become more so for every procedure here. Yesterday Meggy came back from her MRI with a bruise on her forehead. No one could tell me where it came from.

She slept until we got home and even drank in her sleep. Whenever she did get up to move around later that afternoon, she was limping pretty badly. Still today she is limping. I called to ask if she fell off the MRI table or anything, but was told absolutely not. What would you think, and what would you do?

We have a babies can't wait special instructor who will be coming to the house now for play therapy and to work with Meggy on endurance and tone. The team is wonderful and seems very helpful. I think we will see Meggy make progress quickly.

So we have the sleep study completed. We know that she had 2 apneas during it, but the final results r still pending. The head CT was normal, Brain MRI results pending, EEG results pending, cardio check up was great, however we were told there was no longer a murmur, but the MRI doc heard one yesterday.

We still have the colonscopy/endoscopy and muscle biopsy for mitochondrial workup left. They wanted to do a spinal tap but we didn't agree, at least for now. They want to do Resting Metabolic rate, but that requires her to sit still for 45 minutes with a mask over her face. I don't know how that will go over.

Thank you for reading so much. Have a good day.

Dec 18, 2008
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
Hope you hear good results from everything! -Liz
Dec 19, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
i would be nervous if my child came back with a bruise and limp too! i can not believe they could not explain it to you! i would call the hospital administration staff and see what they might be able to do for you b/c that just dosen't sound right. why would they want to do a spinal on her???
Check with your
doctor first!