Posted By Posting
Dec 17, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
In need of support badly
Hi All, It's been pretty bad again lately...Jazzy has been skipping naps and waking at 1 a/m crying, and then only gong back down at 4 or 5 a/m. She tries but just cries..... She is exhausted, and so am I. Her appetite sucks, her poops horrible and her attitude obviously not great. I am waiting for her GI team to call back

And just to top things off, she has raging yeast infection around her anus...:-(

Dec 17, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
((((HUGS))))

I hope they call back soon.

Dec 17, 2008
mommyto2
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Photobucket
First of all I hope you hear something soon. Next, have you had the infection tested. Aubrey ended up having anal strep and took a course of 3 days of ab's and it was gone! No creams or ointments were helping. Just a thought. Keep us posted when you hear back!
Dec 17, 2008
blueleopard
Pictured: G'mom w/3 kids. I'm mom to 1 angel Melissa (dec'd 11/92 - hypoplastic left-heart syn.)
2 healthy daughters (knock wood) Cory (16), Kim (11) & Eric (4) diagnosed with e.e. (scoped 8/08), GERD & severe food/seasonal allergies, asthma. Cried non-stop first 17 mths. of life Found out he is allergic to cow's milk, soy, eggs, and peanuts. Takes Prevacid, Neocate One Plus & Flovent.
I feel your pain and frustration. Are you working with an allergy team as well as GI? My son's GI Dr. got pushed to the back when they found his e.e. I just checked out & practically re-read the book "Is This Your Child?" by Doris Rapp, MD, from our library. It is sooooooooo up our alley. She doesn't mention eos because it was written before it was widely recognized. But, she talks about all kinds of allergies & yeast problems too. Ellen
Dec 17, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I am sorry that you r having such a hard time. I hope that the infection clears soon and that she will get back to sleeping very soon. I know lack of sleep just makes everything harder for everyone.

Hugs

Dec 18, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
It's been horrible lately. Thanks all. Ellen, we were seeing an allergist but they said that since her scratch tests were all neg. chances are she has only intolerances..... I will keep all of you posted.

As for her rash, thanks mommyto2, will keep an eye on it.

Dec 18, 2008
megamason
MegaMan's mom
lotrimin af
My son keeps getting this sevre rash around his anus. he can look perferctly normal and with one BM that is changed instantly he goes to having a very sore hiney. Our pedi receommended lotrimin anti-fungal. it has worked in the past, but we do need to figure out why he is getting it in the first place.
Dec 18, 2008
b-girl
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
Thanks all!
Check with your
doctor first!