Posted By Posting
Dec 16, 2008
molly's mom
Possible endoscopy
My 4 month old had been diagnosed with severe acid reflux (about 2 months ago). She had been on several different medicines and is now taking Prevacid 3 times per day (7.5 mg each time). I am worried that a high dosage like that may have side affects. She is still about the same. She has an NG tube becasue she refuses to eat from the bottle most of the time. We have done a swallow study, x-rays, heart and brain tests, and everything is normal. She just doesn't want to eat..and screams and cries when she eats. They want us to do an endoscopy, but I am nervous. Has anyone had a similar situation-ng tube feeds, refusal to eat, not responding well to medicine?
Dec 17, 2008
jan gambino burns
Jan Gambino, M.Ed
The Reflux Mom
P.O. Box 171
Arnold, Maryland
21012 USA
Mom to Rebecca: reflux and asthma, post nissen fundo, post g tube, post FTT and Jenna: reflux, asthma and POTS.
Author of Reflux 101: A Parent's Guide to Gastroesophageal Reflux.
Hello Molly's Mom, When a baby refuses to eat, it may be due to the pain associated with reflux. Some babies have difficulty eating because of the mechanics of eating. There may be a swallowing problem or other oral motor issue. I wonder if there is a feeding team or speech language pathologist in your area who specializes in feeding issues to evaluate your daughter. At a recent conference I attended, a study was presented that demonstrated many babies with GERD have dysphagia, a fancy term for a swallowing problem. The info is on my blog at and on this website under Jan's Blog. Jan Gambino The Reflux Mom
Dec 17, 2008
What doesn't kill us makes us stronger!
Swallowing problems
I agree with what Jan has said. My son was premature and was born without a sucking reflex and was tube fed for the first few days. He never sucked particularly well on the breast and eventually wouldn't feed at all and was no better on a bottle - but managed to have just enough to remain on the fiftieth percentile for weight. Even now at age 7 (and still has severe GORD) the texture of food plays a big part in whether he will eat it or not. Anyway Eamon (my son) has had a few endoscopies - the first was as a 1 year old (we waiting only because we thought he'd get better). If I had my time again I would have let them do it sooner. In my experience medical experts are more likely to try to deley endoscopy. I understand you not wanting to put your child through such testing. Please message me if you want to know more about how this issue affected my son as I am happy to share.
Dec 25, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
My daughter just had an EGD, if you want to chat about feel free to e-mail me anytime.
Check with your
doctor first!