Posted By Posting
Dec 16, 2008
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
PhProbe results, etc
Hi! I'm back. After waiting 6 weeks!!! for the results of Aaron's PhProbe, it was finally confirmed that he does in fact have GERD. Recap: the Gastro wasn't convinced that he had moderate reflux as illustrated by the Upper GI done in October and felt he had "sleep issues". So when I asked what's next, I was told "nothing". Keep giving him the prevacid and axid. The problem is that he is still have serious problems at night where he is screaming in pain (rolling around, arching, gassy, terrible pain) and can't stay asleep--most nights we get 1-4 hours if we are lucky. Doctor didn't know why and gave me nothing. In addition, Aaron who is now nearly 11 months and has been walking for 2 weeks now and has cut 4 teeth in the last while, is not gaining weight. He has been the same weight now since October. Ped wants to see him on Thursday because he went from 75th percentile down to 50th for his weight. We haven't appreciated much improvement despite the meds, although the puking is now gone down quite a bit. Can I just say that I am so frustrated because I know there is something wrong but I don't know what it is just yet!!! Ughhh...today, on top of everything, he seems to have loose stools (pooped 5 times in 3 hours) and a diaper rash! HELP!!! Yet he is actually sleeping at the moment. Why am I not napping I have no idea! :)
Dec 16, 2008
mommy2max&lucy
Patti, mom to Max (3/04) with EE and chronic sinus issues; Lucy (6/07) with reflux
Hi! Your post sounds exactly like my son at this age. Have they looked into any allergy testing for him? Even now, at 4 1/2 years old, Max has horrible sleep issues when he eats a food that he is allergic to...might be something to consider. So sorry tohear you are still having issues.
Dec 16, 2008
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
Allergy testing
You know, I have mentioned allergy testing before and I keep hearing that they don't do it before a certain age. I think there must be something that he is either allergic to or that is irritating him. I also think that perhaps he needs to be on Prevacid both in the morning and at night instead of the Axid in the PM as I notice that he has much better sleep during the day after he has had his prevacid than he has ever done while on the Axid. There is also something interesting in the newsletter just released (from pager) so I need to read that as well. Thanks for the support!
Dec 16, 2008
maggiemom
Maggie is now 3 years old and reflux free (knock on wood). I still check in some to see how everybody is doing :) Hugs to all!
I remember with my first dd, her ped kept telling me to wait to have her tested when she was 2. I did but I bet if you push, they'll do it. Especially since it's a food issue. I would look into finding a dr that is actually interested in helping to start. I mean you don't need a dr that's not gonna try to help.

Hugs to you! It's a rough road but you will get through it!

Dec 16, 2008
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
It's been quite the road...
Thanks! I think this site is amazing because there are so many of us with kids who are suffering and we think we have no where to turn. But since I have found this site, I've realized that I am not alone and how many kids are suffering through all these miseries and how much information we all have to share. I really appreciate the responses and hope I can be of help to you someday!
Dec 16, 2008
engin117
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including engi.nowaira.net, engi@nowaira.net, Engi@nowaira.us, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
Hugs. I hope u get the answers needed very soon. I am glad that you are being such a good Mommie and pushing for what is needed.
Dec 16, 2008
lorenzomama
Lorenzo b.4/25/07 1 week in NICU w/ aspirate pneumonia from a reflux episode; diagnosed GERD at 9weeks; Used Zantac for 5months. Currently using Chinese Medicine and Craniosacral Therapy. GERD, Obstructive Sleep Apnea, Sensory Processing Disorder. Ask me about breastfeeding a refluxer! Pic: day 5 in the NICU.
In the "sleep issues" arena, I suggest talking with the GI about having a sleep study done, as GERD, I discovered after months of my son sleeping much like yours, can cause obstructive sleep apnea. For some kids, when they reflux, especially those who silent reflux, the airway can become temporarily filled with fluid, cutting off the flow of oxygen. Sometimes that causes aspirations, sometimes not, but unlike most other causes of OSA which cease to be a problem as soon as the child is awake enough to change positions or for the muscles to tighten up, reflux can continue to obstruct the airway even after a complete awakening. This is what often happens to my little guy, and in addition to the frequent wakings and inadequate sleep, it led to some pretty severe sleep anxiety for him. I hope you find some answers, and that both of you are sleeping like proverbial babies soon! In the meantime, know that you are never alone in the middle of the night with your suffering baby -- there are many of us out there awake with you, getting through the best we can, and relying on the virtual support of amazing moms like you find here to help get us through...
Dec 17, 2008
bobblesmom
I am the Mother of 3 children, Alix, Aaron, and Aidan. Alix (5) had "silent" reflux until she was 5 months old; Aaron(age 2) has had GERD since he was just days old but was officially diagnosed with it at 4 months old and has had many tests to confirm it since. Aidan (8 mos) has no signs or symptoms to date thankfully. I never knew what it meant to have a "normal" baby since I had 2 pukers! Nobody understands how hard it is to take care of GERD babies unless they've had one themselves.
Sleep study
You know, I keep telling my husband that I think there are 2 things that wake him: 1. the gassy discomfort, and 2. his constant congestion. I know these are both part of reflux. I will mention the sleep study tomorrow. Thanks for the idea.
Check with your
doctor first!