Posted By Posting
Dec 14, 2008
keely_and_allie
Jedd's Mommy-pH Probe results?
Hi, I asked a while ago if anyone had any experience with a pH probe, and I think it was you who sent me pictures of your son while the probe was in place? And at the time you were waiting to get the results? I hope that was you! Anyway, if that was you, I was wondering if you got the results yet, and if so, how it has affected your treatment. It looks as though in the next few weeks my daughter will be getting the probe. Thanks, and best of luck to you and your son.
Dec 15, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
Nope, we got our results within the week of our stay. That was in March. So we got them already. We were not given exactly how many reflux episodes he had, we were just sadly told to go home on full meds because he needed it...:( We had alot to take in that day because they were giving us the results of 3 tests all at once.
Dec 15, 2008
keely_and_allie
How is he doing now? Is his reflux under control?
Dec 15, 2008
jedd'smommy
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site: www.caringbridge.org/visit/jedd
thanks for asking
Yes his GERD is now completly under control and we are completely oral for the first time in his life. (we aren't using his feeding tube)

There are murmurs of pulling the tube and lettign his stoma sight in his belly close up!!!! WHOOHOO

It took two full years though....:(

We have succssfully weaned him from a PPI to an H2 blocker full time now AND we have stopped using his motility medication as well. So for us, that is huge!!!!

Dec 16, 2008
keely_and_allie
Wow, that's great! He has really come a long way!
Check with your
doctor first!