Posted By Posting
Dec 12, 2008
Mom to Jasmine aka: Jazz 01/24/2007
Dx with silent reflux at 8 months
FPIES, DGE, MSPI. Recently diagnosed with EC (Eosin. colitis and now Primary immune deficiency disease.
Also mom to Nathan. born Jan.20th, 2009, MPI . so far dx with reflux and has an extremely sensitibe GI system. Also dx with primary immune deficiency disease.
She spat up!!
That hasn't happened in almost a year!!! And out of the blue today...I took her off of her motilium a couple of days ago cuz I thought it was giving her abdo. cramps.....and now this! Obviously her Nexium isn't working anymore, but I thought we were all past this??

I am still waiting for the ikea "reflux" bed to come today so that we can all get some sleep at least. Jazz is still not sleeping well unless it's upright and on me sigh...... Just needed to vent, thanks!!.

Dec 12, 2008
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
Well, we are in the same boat. I hope that bed comes soon!
Dec 12, 2008
My name is being used fraudently to ill represent me. Please be cautious of any information you receive with my name. including,,, anything from anyone claiming to be Engi Nowaira online. Otherwise, I will be representing myself in person so that everyone will have opportunity to identify me in person.
My previous drivers license was also stolen. The new one has extra security features on it.
I hope the bed comes soon. Let us know how it goes. I really really hope it works. Is she feeling any better otherwise?
Dec 12, 2008
Liz, mom to Donnie 12/2005
Surgery for Pyloric Stenosis at 5 weeks old
GERD since 4 weeks old
Colic until 13 weeks old
Delayed Gastric Emptying
Surgery for Tubes and Adenoidectomy at 14 months old
Anemic since 9 month check
Febrile Seizures
Speech Therapy
MEDS: Zyrtec, Nasonex, Xopenex,
Vitamins with iron, and back on Prevacid as of 12/2008
We had an episode a day or two before Thanksgiving where I heard Donnie reflux and looked up and he had spit up all over his clothes and had clear liquid coming out of his mouth. I was totally shocked because he is about to be 3 years old and is still having reflux issues. We gave him some Maalox that night and it didn't help, he tossed and was restless and all I could hear was him refluxing the entire night. I hope the new bed helps Jazz. I am sorry you are still dealing with it too! -Liz
Check with your
doctor first!