Posted By Posting
Dec 09, 2008
Kathryn, Pager Volunteer and mommy to Emily Mia 02/04/07. 3 years old with GERD. 30mg Prevacid and Pepcid AC. Mylanta needed for flares. Failed prilosec med switch. Tried and failed many med weans but GERD and pain are well controlled. Functional constipation. Reoccurring SBBO. Suspected IBD or autoimmune disease. Resolved issues: MSPI, CSID (acquired), Stage 2 kidney reflux, Chronic diarrhea.
Audrey Meadow 06/20/08. born 34/35 weeks. Still b/f and eats everything! ftt and chronic constipation.
back from the colonoscopy
The GI found inflammation in areas throughout her whole entire colon. He also found she had a lot of mucus too, this i understood was not a good thing but i don't know why. He got biopsies form every area and was able to reach into the small intestine. We have to wait for the biopsies to confirm anything and then she will be put on a new medicine and IBD will be looked into. Sorry can't write more right now, real tired hope all is well with everyone!
Dec 09, 2008
Adriane Reese 05/16/07; seemingly healthy when born; diagnosed with MSPI, severe Reflux, Apnea, Ashtma, Epilepsy, and severe food allergies(rice, corn, milk, soy, eggs, oats, wheat, beef, chicken, squash, pumpkin, avocado, etc.);On apnea monitor, seems to be tolerating RCF w/carbohydrate mixed in; on Zyrtec, Xopenex, Prevacid
It is good to hear from you. It sounds like the scope was a success and I hope they give you some answers and a way to help her!
Dec 09, 2008
BRANDON-Zantac and Bethanacol; Neocate formula, 2 sets of ear tubes, Adnoids removed, Vasomotor Rhinits, Asthma. Currently on: Xyzal, Omnaris, Flovent and Xopenex,
AUBREY-Zegerid 2x a day, Soy Milk, Tubes put in and adnoids removed (11-7), Hypotonia, ECI therapy for low muscle tone throughout trunk and hips, oral motor issues and sensory integration issues, delayed speech, Teething, probiotics
PICTURE: Aubrey in her cute cat outfit. If you look you can see how her right foot turns in. She walks that way as well. It is not as exaggerated in the morning's but gets worse in the evenings. This was after her nap.
Well, I hate that they found something but I am also glad they found something! How long until you get the results back. Keep us posted. HUGS
Dec 09, 2008
PAGER Volunteer Services Coordinator
Melina 7/24/02 now reflux free!!
Ella 5/3/05 GERD, asthma, hypotonia, food intolerances, esophagitis, IBS //
Ava 5/3/05 asthma, food allergies
Pic: My girls! They are getting so big!
I hope that it isn't IBD but at least then you would know where to go next. It sounds like the scope was a really good plan and hopefully will give you the tools you need to go from here.
Dec 09, 2008
Jessica, Mommy to Jedd, severe reflux, severe food and oral aversions, Finally G tube free!!! VSD repair 4-24-07 (open heart surgery), hypospadias, repaired 3 times and Ear tubes Visit Jedd at his CB site:
I am soo sorry this was not the news you wanted. (((HUGS)))
Dec 09, 2008
Aurora born March 17, 2007
3 years, 8 months old
Weighs 25.8 lbs
8 lbs 11 oz at birth.
Recovered Chronic Projectile Vomiter
Prevacid Free since September 08
Egg allergy diagnosed Jan 26/09
Has a Pectus Excavatum
Has an Epipen
oh Kat, hugs!! I'm not surprised at all that she has inflammation, considering how many diapers she's been going through. It's both a blessing and a curse in a way....wanting a definitive diagnosis...but then you have one. The blessing is that if they know the WHY they can hopefully treat it. I mean, she is suffering, regardless....I will pray it is not anything serious, and something treatable so she can have some relief. HUGS!!!
Dec 09, 2008
Julie - I have three children. My youngest Katie is my refluxer. My first Ben was very colicy and is ADHD. My middle Jakob is pretty easy going. Katie had it bad as a baby no sleep for two years. She was on Nutramagin, Prevacid and Zantac. Thought we were through it but after age three it came back big time. After her scope she was put on Prevacid 45mg a day and mylanta as needed. Scope was in Sept. Showed damage in stomach and espophogus. It took about 7 months of medication and Reflux diet for her to start feeling better.
I pray that this will give you some answers and a great action plan to get her feeling better soon.
Dec 09, 2008
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I am glad the scope went okay and that it was done safely. I am not glad that she has inflammation, but I am glad that u know it is there and hope u can find a successful treatment. I would be curious to know about the mucous too! Hmm.

I hope that all of you get some rest tonight and let us know more as you find out.

Thank you for sharing. I am nervous Meggy's colonoscopy coming up on the 19 and this has helped to alleviate some of my fears.

Where did she have the scope done? Have a great night and hope she feels better soon.

Check with your
doctor first!